Triple negative BC

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Hello All,

I was diagnosed with a small TNBC two weeks ago. This is my second time with TNBC. First time 13 years ago. Had surgery, chemo and radiotherapy then. New primary in the other breast. Anyone else on here in similar situation?

  • I'm sorry to hear that you have to go through that again.

    I have been diagnosed for the first time with triple negative and have recently started Chemo and immuno then will have surgery next year.

    Do you know a plan for yours? Did you just find another lump? 

    Sar  x 

  • Hi Sar, 

    I am sorry to hear your news as well Disappointed.

    it was picked up on routine mammogram in September. Small cancer. I am going in for a lumpectomy on Tuesday and will have a review in three weeks time for future treatment. Chemo and radiotherapy most likely. Did not have immuno last time but will be in the mix I imagine.  X

  • O good luck!

    I'm struggling with awful headaches at the moment but any advice on chemo is always great fully appreciated.

    That's great you were in remission for so long! Xx

  • I think chemo has changed since I last had it. First time around it was FEC and taxol and it was hard going but doable. With first three treatment felt nauseous all the time and last three lost all taste and had joint pain. However will advice you to go for a walk etc when you are able to. As this will keep your energy levels up and food wise I know it's hard but eat what you can. Have you been offered genetic tests? X

  • Thank you! 

    Yeah I'm on paxitaxel, carbo.  Something ha 

    And pembro for immunotherapy.

    9 weeks or so of that then another few months of ec chemo in the new year.

    Yes I'm trying to get out as much as I can apart from he days the headaches just take over. And appetite is good.

    Yes, and thankfully it came back negative I was so pleased. 

  • Hi , I was diognosed the same as you , I had a a breast abscess which seems to come back once a year laity although I have been prone to having them on and off for a few , mine was also picked up on a mamagram, but on the right side rather than the left side, I have been going to breast clinic now for few years, so I was totally shocked to be told I had breast cancer in the right breast, to be totally honest with you ,I think getting the surgery was the easy part once you get your head around it , but I think it’s all the emotional stuff that comes afterwards that’s harder to deal with, especially with all the HRT stuff going on , but I think you need to maybe speak to your cancer nurse because we all need to have our questions answered, and stay on this sight , because what you can’t say to family you can say on here, I wish you all the very best 

    Bodger 123 

  • Hi 

    Thank you. My nerves are shredded at the moment and feel all over the place. Yes you are right - surgery is not too bad. The thought of another four months plus of chemo is really hard right now. Have no choice at the moment. Chemo is going to be my bff. 

  • All this is going to be a struggle, i feel the same as you and im not a great talker, but on here at least you can off load, I have never been on a forum before, I do struggle with technology, but even though I struggle it’s good to speak to people who are going through similar circumstances, I can share things on here that I can’t share with others, we can only get through things in our own way because everyone is different. I wish you all the best and stay on the forum xx

    Bodger 123 

  • I understand I think it’s will be a long road, but what choice do we have,it’s going to be up and down, that’s how I feel, one day at a time because you’re emotions will be all over the place,sometimes a month or 2 can slowly put things in to perspective, I think it a personal thing, would love to keep in touch, xx

    Bodger 123 

  • I’m sorry as well that you have to go through chemotherapy that must be so hard I can’t imagine HeartHeart

    Bodger 123