Hello

  • 11 replies
  • 499 subscribers
  • 622 views

Hi, 

Not really good at this stuff, basically I had surgery for breast cancer at the beginning of the year, followed by radiotherapy, it's been a bit of a roller coaster journey but all is now good and I'm on tamoxifen.

But before that I had a sort of lump in my neck (an ultrasound didn't show anything last year) and recently I have had an appointment and an mri, I was booked in for a follow up which had to be postponed until March so I assumed all was OK, however last week I got a call asking me to come in this week, and now I'm over thinking things.... Has this kind of thing happened to anyone else?

Thanks for reading. 

  • Hi Clara2024

    Welcome to the forum and I am sorry to hear that you have been diagnosed with breast cancer.  They could have had a cancellation and decided to recall you earlier than expected.  Hopefully it's nothing serious.

    Wishing you the best of luck with your appointment.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi Daisy53

    Thank you, I guess I'm just a bit of an over thinker. Hope you're doing ok. 

    Clara2024

  • Hi Clara2024,

    I had a lumpectomy and lymph nodes removed five months ago, have recently finished my radiotherapy and have now been told I am clear. I am also on Letrozole for five years.

    A few weeks before my original radiotherapy, I had a planning scan (which is the norm), two weeks later got a call to ask me to return as they had found another enlarged lymph node. I had to have another ultrasound and three biopsies, but thankfully all were clear and my radiotherapy went ahead.

    I know it’s easier said then done, but try not to think to far ahead as it will only stress you out. A positive frame of mind is important, dump the negativity as it does you no good. Try and do things to relax and take your mind off what’s going on, I put hot water in a bowl and add a few drops of lavender oil in it and place it in the living room/bedroom  and it really helps. You may also benefit from listening to a meditation podcast, I use one called ‘Go Gently’ by Christine Elizabeth Smith which is very easy going relaxes you. I also go for walks and do a daily diary, this is great as it’s a way of getting every off your chest and out of your system.

    Please also remember you can contact Macmillan 0808 808 0000, or visit your nearest centre (a list is on here) who are mega helpful and you get great support on here too.

    Feel free to chat here at anytime, we’re all in this together.

    Love and big hugs.xxx

  • Hi Boobybabe2

    Thanks for your message, sorry you've had a rough year too, but pleased to hear you're all clear now. 

    Had my appointment this morning, now booked for a panendoscopy under general sometime in next few weeks as they're still unsure what's going on. They didn't seem too worried just ruling things out I guess so that's good.

    I'd never had an anaesthetic until my cancer op this year so all a little new still. 

    I used to have a lavender spray, that's a good idea, thanks. Got to get my positive pants on and get on with it. 

    Take care and big hugs back

    Clara2024 

  • I am thanks Clara2024.

    Community Champion Badge

  • Hi, 

    Hope you're doing ok. Just thought I'd update you... Hope that's alright. 

    Was due for my panendoscopy but they had to postpone due to illness, I did however discover whilst I was there that I'm on the 2 week pathway thing, so now I'm not sure what to think?

    Guess I'll find out soon enough. 

    Does anyone know if I'm right to think it's more likely to have a second cancer once a first is diagnosed? Or are they just super cautious with anything not quite right....

    Thanks for reading x

  • Hi  , just came across your post and wanted to reassure you a little, if that’s possible.

    Any lump that is found on a scan, especially after you have already had one type of Cancer, will need to be investigated fully! Although it is worrying especially as they have mentioned it was on a 2 week pathway, which as you suspected means Cancer is a ‘posability’ it’s also just as likely NOT Cancerous, but the sooner they can rule this out the better! 
    Sounds like they are being Super Cautious, which is great, although also very stressful. Let’s hope they can reassure you with some GOOD news soon! 
    Good Luck with the procedure Hun! 

    Oh and a little extra point to share with you and anyone else reading! Having had one type of Cancer doesn’t mean you are more likely to have another, at least I’ve never been told it does!  However having had one Cancer means that every lump/bump/issue you have from now on will always have your doctors in a Spin and they will always jump to rule out the return of your Cancer first! Usually they would work their way through every other option first, with a ‘normal’ patient, but after a Cancer diagnosis they like to rule that out before worrying about what else it might be! Can be frustrating at times, but at least they are looking after us! 

    Hope all goes well Hun and fingers crossed for the all clear! Xxx

  • Hi londonlass, 

    Thank you for replying, what you say makes a lot of sense, I hadn't thought of it that way.

    And it is great that they are looking out for me, much better than having a longer wait and worry (amazing how time changes depending what's going on isn't it!)

    I guess it's all still kind of new and I'm still trying to get my head round this year, it's tricky to figure myself out at times.

    Thanks again Xx

  • Hi, 

    Thought I'd give you a little update. 

    After third attempt to have the surgery was third time lucky as they were happy with what they saw and didn't even take a biopsy.

    Having gone down a complete rabbit hole, was a real relief to get it done and back to my normal recovery.

    Thanks for all the support. X

  • That’s sounds like a very positive outcome  Hope you can now relax and get back to ‘normality’ for a bit! Whatever that is!

    Sending much love to you. Take care Hun xx