Tying myself in knots worrying and waiting

Hi 

The waiting for results and treatment plan is the worst, but you've done the right thing chatting on the forum and looking for others with similar experiences.

I have the same type as you, but luckily, my nodes were clear. However, as mine was grade 3, I am now having chemotherapy. Then radiotherapy then hormone suppressants fir between 5-10 years.

There are lots of effective treatments out there now. I hope you get your treatment plan soon. 

Meantime seek support from macmillan nurses and cancer care who are brilliant at talking things through and reassuring you. 

Happy to chat further or answer any questions if helpful.

I wish you well in your recovery please keep us updated xc

Hi CFC29062602,

I had a lumpectomy nearly four months ago and lymph nodes removed, I finished my radiotherapy a few weeks ago and was recently told I am all clear. It is a shock when you are told and it is important you take a bit of time to let it register and sink in. Although you have every right to feel angry, it is important to take a step back and a few deep breaths in order to think this through properly and be in the right mind frame.

You have made the first big step by finding the Macmillan site, also do visit your nearest Macmillan centre, a list is on here, or ring them on 0808 808 0000, they are superbly helpful and give you lots of great info, do walks, talks, help with benefits, bills, coffee and chat, open 10-5 Mon-Fri and lots more. Please also get a good support structure in place, family, friends, good work colleagues, I’ve lived on my own for nigh on forty years, but realised you can’t do this on your own. I also go for a short walk every day (British weather permitting) and do a daily diary, this is mega helpful, as it gets everything off your chest and out of your system. It is important during the day to keep yourself occupied, hobbies, interests etc., it stops you from dwelling on what is going on. You may also find it beneficial to listen to a meditation podcast, they really help you to relax especially when you are trying to get to sleep. I use one called ‘Go Gently’ by Christine Elizabeth Smith, it does a lot for me. Whatever you do, do not visit Dr Google as there is so much conflicting information, your head will spin and it will stress you out, listen to your medical team and you get great support on here.

I know it’s hard sometimes and it’s perfectly normal to fear the worse, but try and keep as positive as you possibly can, it may not come to that. Also, have positive people around you and dump the negativity, above all, be kind to yourself - I promise you, you will get through this. You are never alone and can always come and chat to us shower in here.

Take care and big hugs.xxx

Hi, sorry you have joined the club that no one wants to join but glad you have sought out this forum.  You will find as your journey progresses the breast care team will be able to tell you more.  I don’t know how the nurse was able to tell you anything before the lab had looked under the microscope.  I was told my cancer was early as I’d had a clear mammogram 10 months earlier.  it was tubular cancer which is hard to diagnose but a good one to get.   But following surgery I was then told  DCIS was found in the margins and it had been there a while.  Surgeons can’t see the cancer when they are operating.  I had asked my doctor could he not just decide when I was on the operating table whether a lumpectomy or mastectomy was required.  He said he couldn’t see it, it would have to be examined under a microscope.  Just take one day at a time.  This is the worst part of the journey waiting on results and a treatment plan. Things showing up elsewhere doesn’t necessarily mean cancer xx