Hello I am HER2+ and ER+ IDC diagnosed 14/8/23. I had to stop all chemotherapy in May with another 8 treatments to go due to chemo induced Peripheral Neuropathy ( grade 3) It had reduced to a grade 1 until a couple of weeks ago around the time I started Exemestane an aromatase inhibitor. I’m back to grade 3 which is frustrating and worrying. I’ve already been taken off Letrazole to go onto Exemestane. I am on Exemestane for 7-10 years
Has anyone else found the aromatase inhibitors made their PN worse? I know it can cause Carpel Tunnel but this is in my hands and feet . Awake with the pain and discomfort .
Thanks
Hi , I was diagnosed the same time last year and had the cancer removed I was lucky it hadn’t spread a had a 5 day course of radiotherapy and the infusion for my bones twice a year for the next 3 yrs I’m on letrozol for 10 yrs and I’m 75, found a few aches and pains at the start of letrozole but from other users they suggested staying active so I walk the dogs and do a senior excercise class and started Tia chi which I love and most of my pain I now just put down to my age .which is bearable worth a try .. good luck
Thanks for the reply…in addition to the issues with breast cancer , in 2023 i was diagnosed with colon cancer that required removal of part of my large intestines. After discussion with colon oncologist about chemo, he advised NOT to have it as i had been through the trenches already….IF I hadn’t had such a rough time with the breast meds i would still be taking them, but just feel life is returning to some sort of normalcy for me without them. I DO wish all the best for each of us juggling the do’s or don’ts of radiation, chemo and the toxic medication treatment.
Oh goodness, I’m so sorry that you’ve had another cancer , that must be tough. How are you doing ? Quality of life is so important.
I had a bizarre 5 min phone appt today with an interim oncologist as mine has left. It was for the results f a CT scan to check for bone mets. It was clear that this chap hadn’t read the report and I had to ask for the results . It seems there are changes in my spine which indicate cancer. He was very casual and matter of fact about it. He wasn’t sure what would happen next ! I’ve spoken to a Macmillan nurse and she is going to see if there’s a plan. I’m hoping the changes are non cancerous no idea how likely that is. I’m guessing I will need a PET scan to confirm diagnosis . It’s good to be able to offload on here. Thank you
Im doing ok…many things about how my body functions are now different then before i had my first surgery…im sorry your now in a holding pattern, yet again, regarding what looks like an issue seen on a CT scan. I also had a recent CT that looked as if i had a growth on my liver..but once additional tests and an MRI was performed it proved to be nothing. When i asked about the CT, I was told CT’s are NOT as clear as MRI’s so perhaps it will be the same for you…keep the faith…
i hope you have family around to support you moving forward. It sure has helped me!
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