Stage 4 breast cancer has spread again

Hi, i have secondary bone cancer and i am also on  Palbociclib and Letrozole and just like you i am having to stop this treatment and go on another type of chemo as Palbociclib has stopped working. My last MRI and CT scan showed my bone cancer was getting worse so need a new type of chemo .  Like yourself i dont know what my oncologist is going to say. I have a meeting with him next Wednesday so will know more then. I will have to have a bone biopsy first he said to see if i am able to have a new target chemo which i am very anxious about, but i must have it or i can not start new chemo. I had a bone biopsy when i was first diagnosed with my bone cancer but fortunatley for me i was a sleep as i was having surgery on my back and they took i then. I will let you know how i get on next week if that helps at all. So i find myself in exactly the same position as you, fingers crossed for both of us.

Hi MrsB6771

Welcome to the forum and  I am sorry to hear that you have been diagnosed with stage 4 breast cancer.  You might benefit from joining our Secondary Breast Cancer forum as well to get support from those in the same position as you.  Here's the link to that forum: Secondary breast cancer forum .

Wishing you the best of luck with whatever treatment your medical team put you on.

Best wishes

Daisy53

Thanks for your reply Wino.  Good luck for next week and I await hearing your news. 

Thank you Daisy53, that's very helpful.

Hi MrsB6771, well just got back from oncologist. He has taken me of Letrozole and Palbociclib from today. To replace the Letrozole he has put me on Exemestane and to replace the Palbociclib i am on Everolimus but not till i have had my bone biopsy.There is also talk of taking me of andronic acid and having an injection every month instead of the 1 tablet that i take now daily. These drugs seem to have more side effect than what i was on but we have to do whatever we can. How are things going with yourself have you spoken to anyone yet 

Hi wino

you are a little further along the journey and I was wondering what advice you would give to someone like me who has just had my diagnosis. It is extremely overwhelming. I only went to the Dr a month ago and found out yesterday I have incurable cancer spread from my breast into my armpit and groin lymph nodes, my lungs, liver and bones. It was a complete shock. I have to wait now to see an oncologist and have no idea what to expect except that there may be decisions to be made. How did you get through this part?

Hi TheaT,  Firstly sorry to hear of your diagnosis, its a horrible time for you right now and it must seem inpossible to think straight.When you see your oncologist he will explain to you what has been found out on any CT scans or MRI you may have had. He will then tell you what treatment is best for your type of cancer. When i was first diagnosed i thought only the worse of senarios which is perfectly normal.Once i had spoken to my oncologist and had been told there are many new treatment available i felt better, I for one felt more in control once i had a plan of action and knew were i was going and so will you as lots of people on here have said the same. Most of the decisions are made by your oncologist, I am very lucky to have a great oncolgist and trust him completly so am happy to leave decisions to him although saying that i will question things if needed. I take as much control of my cancer journey as i can for instance. When i am due a CT, MRI, Nuclear Bone scan i chase them up on a weekly basis and always ask to be put on the cacellatin list this has served me well on lots of occasions and i get them sorted asap. The oncologist secretary is going to be your best friend haha any problems thats the person to ring also get numbers of all oncology nurses they are a god send and can contact your oncolgist faster than most.This is the begining so please remember there are treatments out there foe everyone. You will feel like you are on a roller coaster for a while and at times it will be difficult. There is lots of help out there and on this site so please ask any questions you need to ask as i can say for sure there will be someone here who knows the answer.Crying, shouting,screaming, drinking wine are ways we get it out of our system i for one did all of them. All the very best if i can help just ask Dawn x