New team member

  • 4 replies
  • 499 subscribers
  • 497 views

Hi. I’ve just recently been diagnosed with stage 3 triple neg invasive carcinoma. Finished all the initial tests ( 2 lots of mammograms & biopsies, ct, mri) and waiting to see the consultant for the results. Will this meeting include meeting with an oncologist or is the order of doing thing very much centre specific. Not sure what to expect going forward. Something was briefly mentioned about neo adjuvant chemo prior to surgery. Is this a common treatment plan?  So many questions. I hate this waiting. Any advice comments will be appreciated   Good luck to everyone with their own personal journeys 

  • Hi AJW2617

    Welcome to the forum and I am sorry to hear that you have stage 3 triple negative.  Your results meeting will be just with the breast consultant and if you are having chemo first which is usual with triple negative you will then be referred to an oncologist.  Depending on your results and what your oncologist decides to give you chemo will take about 4 to 6 months and you will then be referred back to your breast consultant for the surgery which usually takes place about 5 to 6 weeks after you finish chemo to give you time to recover.  If you are having radiotherapy after surgery that usually happens about 3 to 6 weeks after surgery again to give you time to recover from the surgery.

    Waiting for things to happen is the worst part of this journey but once they start to happen they happen fairly quickly.  My advice to you is to take things a day at a time and try to get out in the fresh air everyday even if only for a short while and do other things that you love to do to help take your mind off it if only for a little while.

    Wishing you the best of luck with your appointment when you have it and with whatever treatment your oncologist puts you on,

    Best wishes

    Daisy53

    Community Champion Badge

  • Hello,

    I'm responding to your message, it's very overwhelming isn't it! I had neo adjuvant chemotherapy as well. I had her2 positive breast cancer which like yours responds well to chemo. They give the treatment first so they can see how the cancer responds. In some cases it vanishes or almost goes and the rest removed by surgery. It gives the professionals a good idea that the treatment has worked well and if further treatment is needed. I'm 4 years out now and we are all here at different stages to support you.

    Take care 

    Julie x

    Charlieandlola
  • Thank you Daisy 53 for this information. I didn’t realise the length of the timescale involved with everything, I suppose I hadn’t really thought about it. It’s now starting to feel scarily real.  Having support from others helps

    take care

    amanda

  • Thanks Julie for your message of support. Glad to hear you’re doing well. Almost seems counter intuitive to delay surgery to remove the diseased tissue but the doctors hopefully know what’s best

    Take care

    Amanda