Lobular

Hi Dido1 I have lobular cancer and it showed up on the mammogram, ultra sound it was 4cm so quite big.  I believe that sometimes lobular cancer doesn't show up on the normal scans.  I had MRI before treatment to check it hadn't spread to other breast.  Good luck for next Wednesday, take someone with you.  Let us know how you get on.

Lee x

Thank you, hopefully know more after the MRI on Sunday, I will let you know when I go next Wednesday, my husband is coming with me! What treatment did you have?

Hi I had a lumpectomy and sentinel node removal, with one node affected.  I had chemo then radiotherapy.  I always take my husband with me to oncology appointments.

Lee x

Well a lot has happened I have Grade 1 invasive lobular cancer, had the Magseed today and go for the blue dye on Thursday and surgery Friday morning for wide local excision and mammoplasty. Still does not feel real!

Hi Dido1  good luck for your operation on Friday.  I didn't find it too painful.  Do you know what treatment you will be having or are they going to wait until after the op?  I knew before I was having chemo.  Mine was grade 2, stage 3 and 4cm so was quite big.  Good luck. Big hugs.

Lee x

Thank you Leelaloo I have been told radiotherapy. Fingers crossed I have no lymph nodes involved. I have just been told it is Grade 1 and found very early as I had a mammogram last April which was clear xx

Well a lot has happened in the last few weeks! Had my wide local excision 3 weeks ago where they removed a 65mm mass initially they thought it was 11mm. Unfortunately did not get clear margins so having single mastectomy on the 11th May. Had a full CT scan which showed two small lesions on my liver so have an MRI liver scan next Friday. Onco type has been sent off and awaiting results to see if I need chemo. So not the news I was expecting from initial diagnosis when I was told wide local excision and then 5 lots of radiotherapy, but I suppose until they operate they don't truly know! Trying to stay positive 

Hi Dido1 

I am sorry you are facing further surgery and also further investigation of what they saw in your liver. I also had a lesion on my liver picked up through a CT (in my case for other reasons) which did turn out to be metastasis of my TNBC. There are other things yours could be, keeping fingers crossed for you.