Invasive Lobular BC

Hi Amitola

I also have lobular PR+ER+HER- (stage 2).  I had a mastectomy on 3rd August and came home with a drain drain for a week. I didn’t have any positive lymph nodes so was offered an Oncotype test to see whether chemotherapy would be effective.  In my case the score was low so no chemotherapy for me but I’m just waiting now to start a week of radiotherapy and am taking Tamoxifen. I found the first three weeks post surgery the hardest.  After that it did get easier.  Definitely persevere with the exercises as things change every day while you heal. An exercise that is easy one day may pull a bit the next. 

I find going out for a walk helps when I’m feeling like it’s all too much - even if not very far at first.

Be kind to yourself!

Sorry to hear you’re feeling sick & going through all of this. I’ve finally got my appointment with the consultant tomorrow for a treatment plan so a few weeks behind you. I have lobular ER + but PR & HR -ve. I have been told to just expect surgery & radiotherapy but haven’t had MRI results yet. I’ll update along the way. It’s definitely overwhelming and I’m having a bad day today. It’s so helpful to hear other peoples stories, so thanks for sharing. Hugs xx

Sorry to hear that you are having a bad day today SarahBear.  

Sending you hugs.

Daisy53 xx

Hi - I was diagnosed with Lobular Breast Cancer last December.I had a mastectomy with immediate reconstruction and full lymph node clearance in March. Because the cancer was in 3 out of 15 lymph nodes I had chemotherapy and am just about to start 3 weeks of radiotherapy. I will then start tamoxifen. Wishing you all the very best with your treatment.xx

Thankyou ... wishing you all the best x

Thank you xx

Hope all goes well xx

Hi, sorry to hear you're feeling sick with it all, I also had a similar diagnosis to you, but grade 2.

I had LICAP surgery with x2 nodes taken - no positive nodes. My surgery was May, tamoxifen started in August, Radiotherapy was August/September. I still have days where I'm very overwhelmed but they do get less as you go on.

I was offered the genomic profiling test at my 3 week post-surgery apt, to see what my future risk was, and whether or not chemo would be beneficial, thankfully the results were low so I avoided chemo. Don't be surprised if this is discussed at some point. I wasn't prepared for that having been told chemo was not on my cards, so that threw me massively.

I was the most sore about 9 days to 6 weeks after surgery, and my nipple still gets sensitive and sore, but that is (I assume) because of the recent radio.

My next step is a few months of zoladex injections, which was only mentioned when I transferred from surgery team to oncology team. 

I can't offer any real advice on how to keep handling it, as we all react so differently to the news/the physical side and the mental side, but I can say just keep going, do the exercises, get that next apt done, walk as much as you can, talk to friends, take the opportunity to use the Bupa counselling sessions Macmillan offer for free. It really is one step at a time, you will get there, just be kind to yourself xxx

Thank you xx