Hi there
i was diagnosed with a 41mm grade 2 invasive lobular ER positive rumour on Sept 12th and am rattling through all the tests before going back to consultant on 12th Oct for a treatment plan. It all seems to be taking so long and I’m worried because of all of the strikes. It’s been made more stressful by my Dad being very poorly in hospital with metastatic prostate cancer & my partners Dad being diagnosed with metastatic cancer last week (primary still unknown). I don’t think I’ve ever felt so stressed before. How have you all managed the stress and the waiting? I should be helping our families but I’m on antibiotics and am out of resources. I’ve been doing a lot of swimming and having a lot of baths to get me through until last few days of enforced sofa rest! Xx
I’ve just been diagnosed as well with lobular cancer. Last Thursday. You poor thing having to deal with other relatives as well. Please try not to worry and keep keeping yourself busy. I hate the waiting. I just want it all done with. I’ve got to wait for an MRI scan and then wait for the results. Then have my op and then radiation. Chemo apparently is not suitable for lobular cancer so that’s a positive thing. Speak to your allocated nurse about your concerns. They are so lovely. Just keep posting on here as well as the lovely brave ladies are very supportive. You are not on your own and we can do this!! Stay strong. Sending love light and hugs. Xxx
Sorry to hear about your diagnosis and the stress with yourself and family x this will sound crazy but as the weeks go along you almost accept it, and pick yourself back up! Don’t know if it’s a woman thing but it’s like yourself taking back some control x I was diagnosed with invasive ductal carcinoma 30th June after waiting 7 weeks for my biopsy results! I then waited 2 weeks for MRI then 4 weeks for results. Waited a further 4 weeks for lumpectomy and now a further 5 weeks for results!
At first I felt I was climbing the walls with stress and anxiety and couldn’t go back to work due my state of mind. Now I’m at the stage of go with the flow as there is nothing I can do to make appointments any quicker. Think my point is let’s try and be positive (as we can)! We have been diagnosed which is the good news (hard to believe but at least it’s been found) together we will all get through this and the procedures and tests they now do is absolutely amazing. I found that keeping talking to people and this website will help massively. Ask away and let your feelings out as there is always someone on her to help x x x x
Thanks for the lovely response and I’m sorry that you’re going through this too. Sounds like exactly the same treatment pathway, pending MRI results. I had my MRI last Thursday. Lovely friends & partner helping although sadly my breast care nurse is a form filler who doesn’t really do emotions. All the radiographers and doctors have been lovely though. My dog is a great distraction! Glad to have found this forum & sending you loads of good wishes xx
Thanks so much for the kind words. Everyone is being super kind, my colleagues have been amazing & I’ve definitely been feeling the love but there’s nothing quite like talking to people who are also going through it. That’s a lot of waiting for you. I’m glad you’ve been able to have your op and I’ll be keeping fingers and toes crossed for a clear result for you. I’m hoping you’re right & I’ll get better at the waiting. I think it’s the additional family stresses that are taking me out at the knees. Just back from a swim & it always helps me. Sending loads of good wishes xx
Sending you big hugs and glad to hear you’ve been swimming and getting those endorphins going x thank you for the message and I will also have everything crossed, as I think we all do x hope time does help you and sending best wishes to your family xxxx
What a lovely and sensible reply. We are all stronger than we realise! I am thinking this is a huge test for me and I will pass! With distinction!
I am so sorry you have been diagnosed. Mine is invasive ductal, but caught early and small. Have had two lumpectomies so far and get results today for the second time. Fingers crossed for clear margins. I know the waiting is the worse part, but you do get there in the end. As the others have said keep busy and the swimming is a great relaxing thing to do as it takes your mind off all of this. I can also relate to how you feel with having family going through the same thing. I have two siblings fighting their own cancer battles at this time, and it is hard to deal with sometimes. But all we can do is try and stay as positive as we can and do use this forum. It is very supportive and has helped me a lot. I wish you all the very best for your treatment plan. Stay strong. Sending hugs xx
Great news Ladies, got all clear margins this time. It’s such a relief. Time to celebrate that news . Still have to see radiologist. But he will decide if I still need radiotherapy or not. Will go with whatever he decides. I start the Letrozole pills tomorrow. So hope they are not too bad. Wish you all well with your treatment xx
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