Tired

  • 7 replies
  • 482 subscribers
  • 528 views

Hi all..My first time posting here, but you all sound really lovely people..so here goes. I had my diagnosis on June 19th and single mastectomy with implant on August 1st. 2 areas of different cancers present, one of which triple negative. Blessing being that both were stage 1 and lymph node clear. Although I was very nervous about the op it went smoothly. I hoped I'd get away with not needing chemo but it's not to be and my first session is on September 5th...a week before my 65th birthday. I stayed (mostly!) positive until this last week but have crumbled, and am dreading the EC chemo more than the operation. It has been sooo busy with appointments to go to, and so much information to take in that I don't feel I've had time to properly recover from the op and feel exhausted. Not sleeping too well with some implant discomfort still, and anxiety. I worry more about starting chemo when I already feel so tired. 

  • its always scarier before the first treatment, and in understand the ground feeling knocked out from under with you with chemo on the table.

    i find it doesn't make me tired, but i have been able to sleep until now. last two nights a bit of insomnia and well lots of night time wees, because i drink alot after sessions to flush it out. i recommend some audibooks to sleep by, nice calming storyteller.

    im on the last the first for in two weeks Raised hands so looking forward to that. try to take things in steps rather thant he whole thing and lots of us here to help along the way and commiserate when it gets bleh.

  • Hi, it's a lot to take in, isn't it? I remember thinking I need a Project Manager to help me sort it all out, so many appointments and things to remember.

    I blogged throughout my treatment and this one in particular might be helpful, it's all the things I wish I’d known before chemo.Chemo blog link

    Best wishes 

    Community Champion badge

  • Thank you.. such good advice about taking it step by step, and audio books are a lovely idea. It's good chemo hasn't make you tired..I guess I shouldn't think I'm going to have all the side effects! Good luck with that last session. 

  • Thank you...it certainly is. Thank goodness for my e- diary that beeps to let me know what's happening that day. I will have a look at your blog..thank you so much.

  • Hi I have set up a thread for those starting chemo in September. Might be worth putting something on there so you have support. Ec chemo for me wasn't as bad as expected and once I had done my first cycle I felt much better mentally as I knew what to expect. I had a couple of months between my op and starting chemo but it does depend on each person diagnosis and situation. 

    I found it difficult to sleep at start of each cycle but was advised it was down to the steroids I was given to minimise side effects. 

    Take care xxx

  • Thank you. It is incredibly helpful hearing other people's experiences and not feeling so isolated in going through this. It's that waiting time and fear of the unknown that gives me the wobbles, but finding this forum has been  brilliant and confidence boosting. You're all Dizzy

  • Most definitely fear of the unknown is the worst. I had major wobble new year's Day when chemo next year suddenly became chemo this year. And first thing I did on arrival for first cycle chemo was burst into tears which was actually a good thing because nurse could see how nervous I was and said your bricking it aren't you. 

    You are definitely not alone on here. Although each warrior journey is very individual there are sometimes similarities in terms of side effects or questions that you think of. So don't be a stranger.