Cold cap for chemo

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Anyone experience using a cold cap for your chemo treatment 

  • Good luck with your surgery and thank you for your response 

    really appreciate any information about experiences of others 

  • Hi, I’m new to the site so have been reading through some posts and when I saw yours I had to reply. I was diagnosed with stage 1 bc a year ago, had a lumpectomy and lymph node removal and was told I probably wouldn’t need chemotherapy but when I saw the oncologist he advised me to have 6 rounds , 3 of EC and 3 of T. Although I only had a small chance of reoccurrence I was very willing to have iit because I wanted all the help I could get. They told me about all the horrible side effects and one of them being I would lose my hair and that was what I was most afraid of as I’m a hairdresser so I just couldn’t imagine being bold. I asked for the cold cap and it was pretty bad for the first 10 minutes or so but then you sort of get used to it, although I still found it pretty uncomfortable. Within a fortnight my hair started coming out in handfuls so I decided it wasn’t really worth all the hassle so told them I wouldn’t have it anymore and a month later I had it shaved off ! I think my family were more upset than me, I embraced it, bought lots of colourful scarves to match what I was wearing and got on with it. I finished chemo, had radiotherapy and now on letrozole which is giving me some terrible side effects but what doesn’t kill you makes you stronger!! My hair has come back thicker and curly and I love it really short because I don’t have to bother with it (hairdressers are notoriously lazy with their own hair) in fact I get compliments on it all the time. I know it’s not for everyone and definitely try the cap,  but if you don’t get on with it just remember it’s only a small part of your journey. Good luck with everything, I’ve got my first mammogram post bc in 2 weeks time so fingers crossed Fingers crossed x

  • Good luck with your mammogram. I'm due to start chemo amd immunotherapy in just over a week and was adamant I wouldn't use the cooling cap but after an appointment with oncologist and nurse the other day they've suggested I try it and just see how I go. I wasn't too worried about my hair and just looked at it as it'll grow back (I have one half of my head shaved anyway). I'm not vain in the slightest and this might sound really immature but I already feel like I'll feel a massive idiot sittin in the cap and this treatment is gonna take a lot from me, do I want it to take my dignity as well? I really don't know what to do xx

  • Everyone has their own opinion and I’m not vain either but I did feel an idiot and I looked one too ha ha, hubby took a photo for the kids to see me and we all had a great laugh about it. The only thing I will say is I only ever saw one other person with a cold cap on the whole time I was going and all the others were either bold or had scarves/hats on, nowadays nobody seems to take any notice of it and I must say it really didn’t bother me. Good luck with your treatment and I’m sure whatever you decide it will be right for you x