Breast cancer treatment

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Hi there, I'm new to the forum and hoping it's ok to ask questions right away. I also hope my question is appropriate. A breast cancer diagnosis is a bit of a shock and takes a lot of processing. I'm now post mastectomy and lymph node removal, sometimes I still don't feel I've processed properly as I'm very much a person who just wants to get on with things. 

I thank you for any thoughts/experience you are happy to share. 

I'm wondering if anyone has, whether through choice or due to other health risks, not taken chemotherapy and instead post surgery went with radiotherapy and letrozole, or other hormone, plus bone therapy only? How has this worked for you? I realise people can have different reasons for not having chemotherapy, like quality of life or just point blank refusing. I realise these things affect everyone on a individual basis.

Thankyou 

  • Hi Ejsun1, it is hard to process things and it can take a while. Whilst I didn’t want chemo I decided to go for it as I knew it would help mop up and kill any cancer cells floating around the body. The radiotherapy I knew would kill anything in the breast. The hormone treatment and targeted treatment that I’m now on are just to help prevent reoccurrence so won’t actually kill any cancer cells. I did feel crap at times with chemo, but a few days crap compared to the possibility of knowing I could have cells floating around still chemo won. Everyone is different how they react with chemo and it is a personal choice. Even though having chemo fingers crossed has killed the cancer cells there is obviously no guarantee it won’t return but at least I know I have given it my all to try and get rid of it. I will never know what the outcome would have been if I didn’t have chemo but I didn’t want to take that chance.

    wishing you all the best with whichever route you take.

    Hugs from cuffcake x x x x x

  • @cuffcake2000  Thankyou for replying. I'm very much in a quandary, I have a couple of health issues which make oncologist not keen for chemo but could get me through. It's a big decision and I appreciate others experience. Wishing you all the best. 

  • I had a mastectomy for grade 2 invasive ductal carcinoma and dcis .And slnb was done at the same time .Had my results the dcis was high grade and the cancer was small it's a good job I opted for masHeartsectomy because of the large area of dcis.Because the nodes where clear they put me on tablets .They wanted to send a sample to do a onco dx test to see if chemotherapy.I refused because I have a fatHeartsy liver and had read that chemotherapy makes it worst .I made my choices from day one .I was positive all the way through.And they all listened to my concerns.No radiotherapy because I had mastectomHearts .Take everything on board and make decisions right for you Hearts️

  • Hi there, I decided the no chemo route.  My Prosigna test results came back low intermediate with only a 3% projected benefit from taking chemo.  My oncologist told me plan was for 4 months of chemo but I decided to go quality of life route.  He didn’t try to dissuade me.  I’ve had the intensive 5 day radiotherapy treatment and go back this week for my post rads oncology appointment.  All has gone okay, a few blips but resolved quickly.  

    I’m receiving my treatment in Spain.  Clinically all okay I think but no type of additional support.  Thank god for this forum.

  •   Thankyou for your reply, I appreciate hearing your experience. It matters to me. When I was initially told that due to my health issues that chemo was too high risk I was feeling positive going forward. Then on my second visit towards the end the onco threw a curve ball and said he could probably get me through chemo. It basically ended up throwing me into a loop and being scared I wasn't doing the best I could. After a few days of reading and calming down I'm more back to realising my body couldn't cope with chemo, I've suffered fatigue for some time probably due to health issues. I'm back to being more positive about the tablet and looking at dietary changes. Starting to feel more positive again. Thankyou. Wishing you all the best. 

  •   Thankyou for responding. I appreciate you replying. I have gone from being positive about tablet only to going into a head loop about not having chemo and I'm back to being more sensible and knowing my body wouldn't cope with chemo. 

    Your right, this group is really helpful for gaining insight. It's the first I've come onto a forum, I've found some comfort from it which has helped. Thanks again. Wishing you all the best. 

  • Me too, I’m also a forum newbie.  I find it’s very good, anything you ask, someone else will have experience of and everyone is so supportive.  I have my follow up  radiotherapy oncology appointment this week, then next week my consultant oncologist.  I’m hoping that I’ll be transitioning to watch and see mode.   

  •   I'm so glad I came onto the site, I was a little nervous about it, but no need. As you say people are really helpful and supportive. I hope everything goes smoothly for you, every stage is a bit nerve jangling! I wish you all the best as you step forward into watch and see mode. x

  • Wishing you all the very best x I hope it all goes smoothly for you x