Double mastectomy/recon struggle

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Hello, 

I was diagnosed with Stage 3 breat cancer 2 and a half years go. Scans showed multiple cancers in one breast which had spread to lymph nodes but thankfully, it hadn't spread anywhere else. I had to start chemo asap and had 1 full mastectomy, then wait for genetic results, which showed a very rare genetic mutation that means cancer will definitely 100% reoccur somwhere so I opted for a risk reducing 2nd mastectomy. I have to have  full body scans every year for the rest of my life as the cancers tend to be aggresive. I was 35 at ti.e of diagnosis, but I also had had a secondary brain  with unknown primary in the past. This tumour left me with limited vision but I can cope and can work etc. I was incredibly lucky.

I still feel very lucky to be alive and stragely don't worry too much about when cancer will return. However I am massively struggling with body image. My sight has also worsened. I was never hugely confident in the first place at times. Even through the recon is ok, I have some post surgery tissue which they can't do much about and I hate my new nipples. I have gained quite abit of weight and feel so 'unwomanly'. I've had some counselling but you only get 6 sessions at a time and must also click with that person. I have little motivation too

I was wanting to know if anyone else has struggled with body image? and if so how have you managed to cope with it...

Kindest regards

Kitty xx

  • Hi Kitty,

    I had a mastectomy in September ‘22 followed by lymph node clearance in Oct ‘22. I’ve just finished chemo & about to start on radiotherapy. I have been able to come to terms with what had happened (I had a ruptured brain aneurysm needing surgery in Sept ‘21)

    I have had huge issues with my body image. I felt like a stranger in my own body after the brain surgery, and felt it was cruel to put me through having my body mutilated with a mastectomy after surviving the aneurysm. BUT …. I am starting to come to terms with it slowly. I take photos of my scars every few weeks even though I don’t always want to look in the mirror at them. Then on days when I feel able to cope I can look at the photos and see how the scars are gradually changing over time. I massage them every morning with rosehip oil to aid healing. 

    I do not yet know if I will have a reconstruction - I feel my body has been through enough & if I can manage it mentally I won’t. It is a cliche I know, but time really does help. I understand what you are saying about feeling unwomanly - our self confidence and self image is a huge part of who we are.

    I have had some personal trainer sessions with MacMillan based at a leisure centre. It has been SO helpful, both physically and mentally. Not only have we been working on getting the movement back in my arm and shoulder, but working to help my body recover has done so much to improve my body image as I’m feeling more connected with my body again,

    so ….. I think it’s a long term issue, but if my experience helps at all to know that how you feel about yourself can alter for the better. My 25 year old son tells my that they’re my battle scars and proof that I didn’t let the cancer take me away from those who love me. Be proud of yourself and all you have been through - your body might look different, but you are still you inside 

    take care xxx