I am now 5 weeks post-op number 2 (I was one of the lucky 1 in 4 who need a re-excision). First op was full axillary clearance plus lumpectomy.
Good news - I am brilliant a recovering from operations and only 1 of 32 nodes were cancerous.
I was signed off by surgery last week and now have to wait for my first oncology appointment at the end of April. I was originally told that I would need chemo, radio and hormone therapy, but expected this to start a lot sooner after surgery. There is now some question over whether I need chemo.
My good brain is saying great - 4 weeks to get on with "normal" life before whatever comes next.
My bad brain keeps wondering what is coming next and wishes it could know now!
I am trying to focus on work, but my bad brain is winning out and I am not being very productive.
Any tips on staying focused on the known and not the unknown?
It’s normal to wait four weeks after surgery before seeing the oncologist. Do nice things to take your mind if it. It’s great news if you don’t need chemo however radiotherapy is very tiring too. Do things you can do now before your radiotherapy. I finished mine 27th February 2023 and still feeling quite off. Concentrate on the good stuff.
Let me guess have they sent your sample to America for the oncotype dx test? That delayed my journey but luckily the results were back within around 12 days and I had insisted on a phone update and quick booking in with oncologist as the hospital is a 3 hour round trip minimum for what amounts to a 10 minute appt for an update. The waiting is hard. One tip, if you haven't been to the dentist in a while, use this time to make sure your teeth and mouth is in good shape, if you do need chemo and you end up with toothache it is difficult to treat you due to risk of infection. Your mouth needs to be in good shape if you need the bone-strengthening drug injection too, to prevent osteoporosis. I only found out by accident and luckily my dentist fitted me in, completed two fillings and provided a special toothpaste for me to use throughout treatment. Just peace of mind if I feel prepared!
Hi….. yes am sure will all agree the waiting is awful for the mind. It can take us to some dark corners… However it is normal to wait a bit for oncology so that you are recovered from the op etc. During this time I made sure I did my hair, cut and coloured it, had a nice pedicure, saw the dentist and generally did as mush as I could to bolster my self confidence. I remember being well enough o go on daily walks and also cook more healthily. I too was a wuation mark for chemo but due to being HER2+ I had 12 weekly sessions. This was all doable and not as bad as I expect. I now feel glad that I had chemo so that my bad mind can be reassured I had everything!! I start 2 weeks of radiotherapy next week and am starting to see life on the greener side again. Fingers crossed for you that whatever is decided treatment wise for you goes well. Start thinking of all the nice things you can do once you are through your treatments! Best of luck
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