Sad to be here… Help! :’(

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hi there. This is my first entry as I’ve only just joined. I had a routine mammogram end September, was diagnosed 24th November, had my first surgery 11th January and my second - as they needed clear margins, along with my other breast being reduced - on 28th February. Have my first meeting with the oncologist to find out about radiotherapy and anti hormone treatment on Monday. Am feeling VERY down. Most people supporting me seems to have dropped away believing that the worst is over. For me, irs not, my right breast has LCIS in it meaning I have an increase in chance of recurrence. What with everything that’s happened, everything that’s about to happen with the potential side effects and the chance of recurrence, I feel like I’ve got terminal cancer. Does that make sense? My breasts are still really sore from the surgery so I’m very limited at work as it’s a physical job (my partner is the boss and isn't pushing me in the slightest to come back but mentally I need to), and I’m dreading the upcoming treatment and how it’s going to make me feel. I’ve had to come off my HRT and had my coil removed which were treating my endometriosis and menopause, so I’m simply feeling really pants. Im getting married in 3 weeks as well and am feeling under SO much pressure, I’m struggling to cope despite all the positives :’(

  • You are feeling just as we all do at your stage.  I had a second surgery to remove DCIS in my margins.  My last surgery was December 9th and I don’t feel in the right place to return to work.  If your work is manual you would be silly starting back just yet.  Take each part of the journey as a step.  You are probably so exhausted physically and mentally that you are just overwhelmed.  Go for a short stroll and see if it relieves pressure if you

  • Thank you. I feel such a fool as there are so many positives but it really is just plain rubbish isn’t it. My partner has been amazing and so supportive but I feel so miserable. This weather doesn’t help. Everything including me is grey! We are even picking up a new motorhome next week. SO much to look forward to! I think you are right though. One step at a time x

  • Hi Karen you are going through so much at the moment. I had to stop HRT and it's awful hot flushes etc . I had surgery October and radiotherapy January I'm now slowly able to walk with our dogs most days. Please consider rearranging your big day. There is so much for you to do when you should be resting and stress free. Your family and friends will have to understand you are not in the right place. Self healing, calm stree free and being kind to you is so important for your recovery.

    It's your big day not theirs if the date moves so be it best wishes x

  • Hi, I totally understand how you feel. I was diagnosed through a routine mammogram and I think I have had a bit of a delayed reaction to my diagnosis. There was a lot of activity before my operation 4 weeks ago with work and hospital appointments and I really didn’t have time to think about my diagnosis. There are loads of positives I have a great family, lovely friends and I have healed really well ….. BUT …::: at times I am just tired and irritated with all of it. I know I am lucky that they have caught it early but I still have more treatment to come and I am waiting for op results to finalise my treatment plan. I worry about side effects too. I will have to have chemo and I worry that I will be absent from my new job longer than I originally thought. I am also tired of getting my boobs out!!!! Joy

    I suppose what I am saying is that although I am grateful for all the positives it is also ok for me to be a bit scared about what is to come and not feel upbeat all the time. On these days I try to be kind to myself and pick something I like to do.

    I hope you have a fab wedding and I am sending you lots of positive vibes for your journey ahead Heart

  • Hi  and another warm welcome to the forum. The club nobody wants to join but nevertheless a great place for support and shared experiences. Lots of lovely words already from the fine folks here. Definitely have found that however supportive friends and family are, they just don’t really get it. In truth they can’t. I have a lovely friend who suggested a big girls night out when my radiotherapy finished, to celebrate. I had to tactfully explain that although I was glad it was over, I really didn’t feel like celebrating. In fact I felt more like huddling in a corner licking my wounds, so to speak, although I didn’t say that! We each have to deal with this in our own ways and only we know what’s right for us. 
    Re looking at positives, I have done that from the start and am very ‘grateful’ that it wasn’t worse, but all the same I’d much rather not have had cancer at all!! None of us asked to get it and it is sh** but we try to make the best of it. 
    Hope that at the very least you feel less alone for having come on here, it’s a great community and there will always be someone going through something similar. And hopefully it’s encouraging too that there are many of us still rattling around the site many years after our initial treatment! I am mainly to be found on the Walking back to happiness thread (in General Discussions) as walking has become my sanity saver! 
    Love and hugs, HFxx 

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi