Newly diagnosed

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I’ve just been diagnosed with breast cancer and wanted to reach out to find some support and information from others going through the same. It has been a massive shock and I’m still struggling to process it. How did you cope? X

  • Hi Millsey, I’m so glad you got through your surgery OK on Wednesday. It must feel good to have that over with. I hope you’re not too sore and you’re resting when you need to and taking care of yourself. Xx 

  • Thank you Brian69, I was still a bit of a mess even with the diazepam!  But if I can do that, I can do the next bit too MuscleThat’s a helpful way to think about things, moving one step closer to the goal each  time. Thanks for your support, it really helps to be in touch with you all on here Heart

  • Hi Musicmumma. How are you doing? I hope you’re ok xx

  • Hi Kerry, I’m really sorry to hear what you are going through. I have just been diagnosed a week ago and I completely understand the shock and feeling of being overwhelmed. It is very hard news to take in. 
    I’m so pleased you have a good friend who is supporting you, I’m sure they will be a comfort and a strength to you. I have also found being connected with others on here very helpful as they have posted kind comments and shared information that has made me feel I can cope. 
    You will cope too, even though I know you must feel very scared and have lots of questions at the moment.
    I have found going for a walk very helpful as it gives me time and space to think.
    I have also put all the letters and leaflets they gave me at the hospital into a folder so I don’t have to look at them, but I can do when I’m ready. It sounds silly but I’m trying to treat recovery like a work project that I can engage with for a bit and then pack away in a folder. That is helping me a bit with not thinking about it all the time. 
    I have zero appetite at the moment because I have been so stressed. So I am just trying to eat small snacks of nutritious food and have some treats when I fancy them too.
    I don’t know if any of those things will help you but I hope it helps to know that you are not alone. People on here care about you and will support you. 
    Take care xx

  • Hi Rosie, Getting nervous now as the Mastectomy is on Thursday, but I also can't wait to have it done so I can start the recovery process.  How are you doing?? Xxxx

  • Hi hope it all goes well for you on Thursday  Musicmumma. I completely understand why you feel both nervous and also can’t wait to get on with it at the same time. I will be thinking ofyou and hoping everything goes well for you Heart

    I am doing a bit better today thanks. I have been out walking every day which I think has helped me, and I’ve arranged to see a friend for a walk and a chat on Monday. I’ve only wanted to be with my family so far but I think this will do me good. She is lovely and won’t mind if I cancel on the day but I’m going to try not to do that. One thing I have noticed is how exhausted I feel. Did you/do you feel like that too? 
    xxx

  • Hi Rosie. Thankyou x Glad you're doing ok and it's always good to try and get out, I understand about wanting to be with family, I did but I met a friend who has been through breast caner a couple of weeks ago, was really lovely to talk to her as she totally understood me!

    I know what you mean about exhaustion!! I was at first then it kind of faded,but it's back again now. I went through a terrible day last week didn't want to see or talk to anyone even my family, I cried all day,eventually I spoke to my husband over the phone who calmed me down, and the next day I felt much better for it! Take care xxxx

  • Hi Musicmumma, I’m sorry you had such a bad day last week. It sounds like a bit of solitude and a good old cry was exactly what you needed that day. It can feel scary to let go like that but I’m glad it helped you feel better. It sounds like your husband was there for you too. 
    I don’t have a close friend who has had breast cancer but my auntie had it at same age as me (under 50). When I feel ready, I am going to ring her and see if she’ll tell me about it and how she got through. That family link could be coincidental but has made me worry about my sister. The consultant said they will explore the possibility of genetic testing if and when they need to, once we know more from the biopsy. 

    I’m glad the exhaustion is normal and that it comes and goes. I’m sorry you’re feeling like that again at the moment. I hope you can rest and you get your energy back soon. Xxx

  • I went to my appointment Thursday, expecting to get a treatment plan and hopefully a date for surgery. Unfortunately I didn’t get either - my MRI scan revealed there is another lump in the same breast that needs further investigation. I’ve been urgently referred for another biopsy, and told that if that comes back as cancer, I can’t have a lumpectomy I’ll need a mastectomy instead.

    I’d just about got my head round the first scenario, so this was a curveball I wasn’t expecting and has thrown me back into that awful waiting bit with all the uncertainty again. I’m trying to see the positives - the scan showed the other breast is clear, and the new lump may turn out to be benign. It’s just been another shock. 

  • Hi Rosie12

    I am so sorry that everything is up in the air again….. the waiting is utter pants and the worst part of this journey. Yes, there are positives but it doesn’t stop us feeling shocked and overwhelmed with news like this.  Be kind to yourself. I am sending a huge virtual hug and lots of positive vibes Heart  ️