Hi, pleased to meet you all just wish this was about something else!
Started with low grade liver pain which spread to back & was alarmingly painful in October. Long story of GP visit (to see nurse who thought gallstones), 10 days before could get appointment even for blood test. Ended up in A&E twice feeling I was wasting people’s time. Finally early December had CT (ultrasound showed my liver as ‘beautiful’), which showed 2 lesions in liver & on spine, ? Uterus. Was told callously that it was obviously cancer. Further CT on 17th to look for primary cancer, showed abnormal cells on surface of left breast/lymph nodes.
Got biopsy tomorrow. The waiting has been unbearable. Spoken to some lovely people who have MBC (if that’s what I have) & it has been positive. Petrified. Am very squeamish too so that doesn’t help. I’ve had no conversations as yet with a doctor, apart from the one who just said obviously cancer but I have no other information, just 2 lots of 2 week waits!
Here for support & knowledge. Trying not to Google until I know what I’ve got. My conclusion and shock so far is that cancer is indeed very sneaky! Clear mammogram March & apart from my roaming pains, I feel really well. Liver pain has gone. I’m now off HRT & thankfully the reasons I went on it in the 1st place have not returned for which I’m grateful.
If you read this far, well done. Look forward to engaging with you.
It's sad that someone who was working in that area could give you a diagnosis in such a way. I'm waiting for my results on Friday post surgery. Once you see the right people it will all click in. My Mother was told by someone like that, at least the MacMillan Nurse who was there was kinder.
I don't know if mine has spread yet. They took all the lymph nodes out. I'm not in your position, I can read how desperate you must feel. One of my liver enzymes is abnormally low and my urea is up. Don't know what this means yet. I think we all have lots of questions at this stage. We all need treatment to start. Hope is eternal, I hope to have some more time with my son and family.
I was a nurse and I don't like needles. My Mother told me when visiting the dentist pretend it's going into an orange. When I had my surgery early Dec, I talked a lot and tapped my foot, I always do something like that when having needles for whatever reason. Hope it's ok tomorrow. My biopsy was covered by local anaesthetic. Most of the staff are kind, not like that ass. Hug for you, we just got to put ourselves through this. Hope and prayers for the best outcome. Xx
Thanks Sabrina, hope the bloods prove to be innocent. Thank you for the tips, the orange might help as I tend to faint whenever they put a line in which is tedious. I nursed my son through relapsed leukaemia (he survived) & my squeamishness improved for his sake so I’m hoping for the same 20 + years later.
Fwiw, my liver is showing no signs of anything in bloods. It’s hard not to try & 2nd guess, isn’t it?
How are you recovering post surgery?
Hi Islabobs
Welcome to the forum and sorry to hear that you are waiting on a breast cancer diagnosis. Whatever you do don't google your diagnosis when you receive it as the information on google is usually out of date. Instead rely on sites like this one and Breast Cancer Now for your information. Here's a link to the various ways you can get support from Macmillan:https://www.macmillan.org.uk/cancer-information-and-support/get-help.
Wishing you the best of luck with your biopsy tomorrow.
Best wishes
Daisy53
Sorry to read your journey so far. There are lots of women n this forum LIVING with stage 4 BC. Huge advances in treatment thankfully.
My tip for tests is to sing a silly song or nursery rhyme. Aim to get to specific verse . I did this through biopsies and having a wire inserted for a wire guided surgery . I think I sung out loud at wire insertion though as had funny looks but the whole procedure was odd. Lie on table face down with boob hanging through hole. Then bed jacked up and staff went underneath table to put in mammogram to find tight spot for wire. They were right here they said it's like working on car ! Biopsies are painless as they use local anaesthetic. Good luck.
Hi Islabobs Sorry you find yourself here and for the somewhat abrupt way they told you what they thought you were seeing. Hopefully it won’t be long before you have the full picture - and a treatment plan to go with it. Although treatment will depend on what receptors, if any, your cancer has, there are more and more treatment options becoming available for all types of metastatic breast cancer. (I have triple negative BC with a secondary on my liver, currently in ‘watch and wait’ mode having had a pile of chemo and microwave ablation of my liver tumour. Looking forward to immunotherapy as a next step, when needed)
Hi Coddfish, have you been in treatment long? I so want to get started or at least know what’s happening. Looking forward to speaking to a doctor in the right discipline.
I ride horses & hoping this will be something I can continue.
Thank you for your positivity.
I was between terrified and bemused at being worked on like a car. It's a very fine wire that they coil and cover with dressing till surgery. Didn't know it was there. If they had left a marker at biopsy it wouldn't have been needed but they didn't put a marker in. I'm sure I sung out loud as they gave me bemused looks!!
Hi Islabobs I was diagnosed with BC in February following a routine mammogram. It was initially thought to be early stage. Wide area excision and sentinel node biopsy in March. Started chemo in May. I had a scan in the summer (coincidentally) which found the liver lesion. Radiotherapy in November and the liver ablation just before Christmas. I have been writing a blog which might help you get a sense what some of the various procedures are like to go through. community.macmillan.org.uk/.../a-trip-with-triple-negative-breast-cancer
Hi Islabobs
I'm ok apart from the shoulder is a bit stiff. The arm not as flexible in the upright position. My son is very complicated Autistic and Epileptic. I had to do CPR on him at 15 yrs, his breathing didn't return during his first major seizure.
The wounds have healed on the surface. You have been through a lot already as have I. Cared for my Ma with Alzheimer's and the bowel cancer. I just feel I can do this. I have seen people suffer. I am very stoical on the surface and appear quite tough or strong to some. I have been brought up with a bang by this. Hope the treatment works and I and all of us can move on. Xxx
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