Hi, I’m Ava27 and was diagnosed with triple negative breast cancer in early July this year. I was told by my consultant that I would have chemo first, then surgery. I’m still unclear as to why it was in this order as most sufferers I’ve since met, are having surgery first then chemo. Is there a reason?
I have also been asked to participate in a research programme at the end of my treatment where I will, if selected, have an approximately 50% chance of avoiding lymph nodes being removed where no evidence of cancer is detected. I’m not sure if this is a good idea, does anyone have any thoughts on this or have you indeed been selected for this?
Thanks
Hi Ava27
I was diagnosed with TNBC in April this year and had a lumpectomy at the end of the month. Since then, I've been on chemotherapy and will finish with radiotherapy, probably in the new year.
While having chemo I've talked to others who have breast cancer, and some have had surgery before chemo while others are having surgery after chemo.
Can I ask why you'd have your lymph nodes removed if there is no evidence of cancer in them? I had no evidence in the 2 sentinel lymph nodes that were removed and it was never suggested that they'd remove the remainder. I thought lymph nodes were only removed if there was evidence of cancer in them.
x
I have TNBC and had surgery first. I think it’s normally based on the size of tumour / suspicion of cancer in lymph nodes. The advantage of having chemo first is that they can assess whether the chemo is effective for your cancer, plus if it shrinks the tumour it makes it more likely that you can keep your breast.
Hi, I had a 55mm lump and had chemo first, to reduce the lump. This worked well and I ended up only have a lumpectomy, much less invasive than if I'd had surgery right away. They removed 1 lymph node during surgery to biopsy it, and thankfully it came back clear so no spread. Best wishes
Hi Ava27, when i was diagnosed with breast cancer, they also found a lump under my armpit in my lymph nodes. I had 20 weeks of chemotherapy from April/22. Chemo helped to shrink the tumour. I just had lumpectomy 3 weeks ago, two of my lymph nodes were removed and biopsy came negative , which is good news. I’m due to start radiotherapy next week. The treatment plan may differ from one person to another I presume.
I would also think the research is a voluntary thing and there is no pressure to take part if you re not happy to do it?
I wish you all the best in your journey
Hi Ava27
I was diagnosed in August 2022 TNBC 30mm grade 3 stage 2(no lymph node involvement). As I understood the protocol is all lumps over 20mm/2cm would start with neoadjuvant(before surgery) chemo in order to shrink the tumor... and there is a suspicion that over 20mm tumor would involve some nodes even if not enlarged yet. There also is a chance of Pathologic Complete Response after chemo that will increase your overall chances to some 95%(of no recurrence) but the goal is shrinking and chances are great either way.
Also if you have neoadjuvant chemo chances are lymph nodes will be cleared by chemo and you will avoid the removal of a big part of them.
I have one more infusion Paclitaxel & Carbo out of 12 and will begin Epirubicin &...(forgot the name) in 3 weeks time. Chemo has ups and downs but it`s doable.
XO
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