High grade DCIS,

  • 8 replies
  • 483 subscribers
  • 1074 views

So, 31 years old. 3,   (2,3 &12) kids and on the 23rd September was told I had High Grade DCIS, full mastectomy and reconstruction next week Wednesday 26th October.. I'm petrified, numb, in a dream I mean my thought process is unknown. I have a thousand different things running in my head. I've written my goodbye letters, instructions on how to look after the children for my husband. .. is this normal???

My mum had/has breast cancer much worse than this.. so why do I feel like it's the end of the road.

I feel like I'm counting down the days to my death rather than just an operation to remove it.

I feel guilty because there are people with this nasty disease and I'm not even on a stage 1.

My work has asked me to prove it which I've given letters and now I just feel like a nuisance to them. I feel like a broken record to my husband poor sod. My sex drive is that of a nun.... none existent.

I'm not the drama type but I just feel like screaming crying like a little toddler but I physically cant!...

The lump in my boob wasn't there in February and now it's 8cm almost the size of my actual boob I can't stop seeing it, so can't just think of something else like everyone is saying. 

Is this normal or am I just working myself up for no reason xx 

  • Hi Mocana18

    Welcome to the forum and sorry to hear that you have been diagnosed with high grade DCIS.  What you are feeling is perfectly normal and you have no need to feel guilty about how you are feeling, there is no right or wrong way to feel about a cancer diagnosis, even one that's considered a stage 0.  If you'd like to find out about your type of breast cancer have a look at the following link: https://www.macmillan.org.uk/cancer-information-and-support/breast-cancer/ductal-carcinoma-in-situ-dcis.  You could also ring the helpline to speak to someone about your situation.  The number is as follows:  0808 808 00 00.  I'm also sending you a link to the supports you can receive from Macmillan if you would like. https://www.macmillan.org.uk/cancer-information-and-support/get-help.

    Wishing you the best of luck with your operation next week.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi I had a day like that today .

    I am waiting for my mxt op date .

    woke last night for 2 hours thinking about death .

    mind playing havoc with me .

    sending hugs your way xx

  • Our minds are our biggests traitor.. just when you need that self reassurance it stabs you in the back. 

    I hope you get your op day soon. This is my first operation..ever! So not gonna lie cacking it!

    I wish you all the best, hugs

    Maybe out of this bloody thing we gains some friends xx

    Hope you get some sleep... I'm Bearley getting it myself as well. 

  • My friend was in the same boat in 2011 she made some breast friends during her hospital visits and treatment . She still sees them now . xx

  • Hi Mocana18

    sounds perfectly normal to me, so sorry about your diagnosis. 
    I also had my diagnosis a week ago of high grade extensive DCIS and plan is also mastectomy +/- reconstruction. 
    I’m 43 also with 3 children 17,15,12 .. my head is all over the place especially as I was advised today to have the sentinel node biopsy before the mastectomy and recon.

    Just wanted to reach out and wish you all the best with your surgery xx

  • Could be me that’s written that . Same diagnosis as me . I went yesterday and was given a date 28.11.22 for my mxt. No reconstruction at this Point as my boobs are a DD so an implant would be heavy and possibly the scars would not heal .

    plan is a mxt and a reduction of my left breast .

    Been put on meds until the op to stop the eastrogen. On a positive the HER2 tests came back negative . 

    On a mission to get some weight off before my op .

    We can do this together .

  • Hi Lazy Daisy, 

    I am still undecided about reconstruction.  I have a date pencilled in for surgery early December recon or not. To be honest I’m very nervous about what the Sentinel node biopsy will show and I’m going in for that on Nov 17th Fingers crossed

    thankfully we are able to connect with others in a similar position .. and yes we can do this together MuscleHeart

  • Hello Mocana,

    I appreciate that this post is fairly old now but as I'm going through the same thing at a similar age, I just wondered how you're doing?

    Best wishes