Diagnosis

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Hi, I am new to forum as just been diagnosed with breast Cancer three weeks ago, but after CT have found it has spread to my bones which I just found out about two days ago.  I am in shock and having sporadic melt downs.     

  • Hello and welcome.  You are not alone there are a lot of women on this forum living with secondary cancer and will be better to help you.  For many secondary cancer now so well controlled it's classed a chronic illness .

    Link to secondary forum 

    community.macmillan.org.uk/.../breast-secondary-cancer-forum

  • Hi, the same has happened to me. I was diagnosed with breast cancer on 20th May, then on 15th June after several different scans found out it has spread to my bones.

    I was told it can be treated but not cured.

    I have been given Letrozole as I am Estrogen positive and HER2 negative, to block Estrogen production. 

    I am to have a consultation in a couple of weeks to take bloods and to go on to another drug to try and stop the cancer spreading and slowing it down. Also 4 weekly injections to strengthen my bones.

    I am still in shock and keep having the same melt downs.

    My sister who lives abroad came over to the UK (I hadn't seen her first 2.5 yrs due to Covid) is here for 3 weeks and was with me when I found out that I had stage 4 cancer.

    I was asked if I wanted to know the prognosis but declined. 

    So for now we are trying to enjoy our holiday together   but I know when she leaves and I am alone I will find it much more frightening. 

    We must try and be strong  and fight every day. I am here for you, 

  • Am so sorry to hear your news. You are bound to be in a state of shock. There are many women living well with secondary breast cancer in the bones and doing extremely well.

    There are lots of people here to support you. The macmillan support line is great to call just to let it all out. Your breast cancer nurse can refer you for counselling if you feel that might help at some stage. 

    Thinking of you and hope that you get a treatment plan soon xxx

  • Hi,  I am also on Letrazole and will be getting Zoledronic Acid  injections for bones. Will be speaking to Oncologist this week to find out what other treatment they will be giving me.    I have been told also not curable but treatable.   Trying to be strong and appreciate every day - despite the meltdowns.  Perhaps these  will become less frequent once the shock has worn off.   Enjoy your time with your sister.   I will be planning some memory time with my family too.  Please keep in touch and let me know how things are going for you and notes on the treatments.