Should i have chemo

FormerMember
FormerMember
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Hi I have had a lumpectamy recently which was successful, i will be having radiotherapy and i will be going on tamoxifen but i have been given the choice of whether or not to have chemo as the oncologist says they cant advise me either way as I'm in the  3% range. 5% or above they would say yes 1% they would say theres not much point the disadvantages outweigh the benefits. They say the can only advise me of the benefits and disadvantages its up to me tp decide and my heads a bit wrecked. To give a bit more info it was an infiltrating ductal cancer grade 3 oestrogen positive/ her2-, they feel they remove it all successfully with the lumpectamy and are satisfied it didnt travel, my lymp nopes were clear, no family history of breast cancer. The chemo would be incase any microscopic cancer cells were left that they cant detect and that may or may not have travelled. Any suggestion or advice would be greatly appreciated. Thank you. 

  • I just wonder if they have done an oncotype score for you? That would give an idea as to whether or not you have a higher chance of little stray cells that chemo might help. The higher the score the greater the likelihood of benefit from chemo. It is so hard to decide when the benefit is 3% and you are sitting in the grey zone. Good luck with making the right decision for you xx

  • Grade 3 would suggest it might be a good idea,  though it's a close call,  and you'll be taking hormone blockers.  Have they done an oncotype test? Was there vascular invasion? Those are questions to ask. 

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Hi

    I was in the same position as you and for me I decided to go ahead for the chemo mainly as my dad had cancer and went very aggressive in the last year, even though it was low grade. I think every percent that prevents it coming back is a good thing. Not going to lie though 1st chemo I reacted to now on a different one which is OK but side effects are rough. Maybe look at family history but good luck whatever you decide xx

  • I would also ask for an oncotype, which they should really fund. I think it’s about £3k if you have to pay yourself or there maybe cheaper uk based ones- endopredict or prosignia. 

    the grade 3 would sway me towards it, in all honesty. 

    best of luck with the decision xx

  • I hope you don't mind me jumping on to your post as I was wondering if anybody knew if all the chemo drugs that are offered for breast cancer causes you to lose your hair?  

    I mention this as I have recently finished six courses of chemo for ovarian cancer and was given Carboplatin and did not lose my hair so I was wondering if there was a chemo drug for breast cancer that means you could have chemo and not lose your hair?

  • Yes,  the EC chemo would,  though cold capping works (to a degree) for some.  The second chemo is either Docetaxel or Paclitaxel (which can also cause hair loss).

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,