OC and BC

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Hi everyone x

just joined this wonderful forum today. I would really appreciate any advice/info anyone can give me.

My 'problems' started in January 2022 when out of the blue I was needing to pee umpteen times a day, sometimes not making it to the toilet. I went to my GP who initially tested for a UTI, it was clear. She referred me immediately ( got an appointment 3 days later ) for an ultrasound. Something 'showed up' but they couldn't determine what so an MRI was arranged. Again, I had this within 2 weeks.

The day of my MRI came and on the way home my GP rang to tell me there was a 'structure' inside one of my fallopian tubes and they couldn't determine whether it was cancerous or not. After some initial appointments with gyny team it was suggested ( due to some fallopian tube problems years ago ) I should have a total hysterectomy. ( I'm 60 ) i agreed and had this done end of April. In between this though I had an all over body MRI and it showed a tiny 'concern' in my left breast. Another MRI and biopsy of my breast did indeed indicate a hormone receptor positive cancer. I was going to have a lumpectomy and 3 weeks of radiotherapy. I received my hysterectomy results yesterday. I have 1C OC. My breast op is now on hold as I start chemo for the OC very soon. I'm stunned to say the least. Im very worried my BC will just spread and grow, tho my cancer nurse assured me by continuing on the Letrozole I'm still being treated for the BC.

Has anybody else experienced this?

Most grateful for any advice

Thank you..

Lovetowalk over 3 years ago

Hi Fee27,

So sorry to hear about your diagnosis but welcome to the group. Sorry, I'm not able to offer any insights into your specifics but just wanted to send a hug.

I do know that the Macmillan helpline have a medical team, it may be worth you giving them a ring.

Wishing you all the best on your journey of recovery Xx

Fee27 over 3 years ago in reply to Lovetowalk

Hi Lovetowalk

Thank you so much for your kind words I will indeed look in to ringing them x

Bobbiboo over 3 years ago

Sorry to hear this. It could be that the chemo will help with the OC ? They are often slow growing so hopefully the letrozole will hold it at bay. The breast care nurses are very knowledgeable so many speak with themmir mcmillian as suggested .

Best of luck xx

GreyCats over 3 years ago

The presence of both OC and BC makes me ask this: have you been offerred genetic testing? There is a particular mutation that makes a person more likely to get both, completely independent of each other.

What chemo are they putting you on for the OC? (Since the left breast tumour is "tiny," I cannot help thinking that there may be a good chance that the chemo could remove it.)

As for past experience, my mother had both cancers and was treated for both at the same time and by the same oncologist. Thinking about it now, I wonder about that setup, because in the hospital where I am being treated, breast and gynae are completely separated from each other. The teams would keep in touch with one another, but I would verify, when seeing one team, that they are up to date on the other.

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