Triple Negative Breast Cancer

 welcome TOOt5weetso sorry to hear of your diagnosis I remember that the 1st couple of weeks were horrid you have so many test and so much information to take on board it does get better once you know exactly what treatment you are going to have it give you something to focus on not much help to you right now I know .there is nothing wrong with being scared or crying we have all done it and still do now mostly in middle of night so not to upset family it's a scary scary time but the hospital's and nurse  are amazing they will do all they can to help from drying tears to explain exactly what happens next to just bringing you a cup of drink because they can see you struggling and there are alway people on here to talk to we may all have different diagnosis and treatment and might be able to only offer a cyber hug but strangely it seems to help I hope the pet scan goes ok sending love and hugs xxxD

Thank you for your message. I just don’t know what to do. I just hope and pray that the results of the PET scan are OK, if things are worse then I don’t know what I’ll do. Hearing the original diagnosis was horrendous. I’m only 47 and have a lovely husband and 2 lovely children 17 & 13. I just want everything to go back to normal and to be happy with my family. This  diagnosis had completely ripped my world apart and I’m not dealing with it very well. 

I do hope things are going well with you.

Sending hugs. x

Hi. Some of your story is exactly as mine -- triple negative, and at first they thought they saw something on my liver. Another scan, still inconclusive, but three months on the liver thing was no longer visible, whatever it was, and never showed up again on any subsequent scan. I had all kinds of other suspicious findings initially, all turned out to be nothing in the end, but it was not a very pleasant time waiting for all the additional scans and then for the results. 

I hope you get all the scan results soon, and a clear treatment plan from the medical team.

Hi

There are so many scan, I just don’t understand how the liver and bone ‘spots’ weren’t picked up on the MRI I had a couple of weeks ago. 

How is your treatment going? Are you having chemotherapy? I was told I would need chemo first, then surgery. I just want it over with, I’m really struggling to deal with it all.

x

Hi, 

Am sorry you struggling with all this. It’s a lot to take in and they have to do all the scans to make sure they get your treatment right. Stay strong xxx

It's all to do with how each scan works to "see," and sometimes with the angle from which that scan is looking. 

I too was told chemo before surgery. Mine turned out to be a bit of an unusual path so I ended up having a lot of chemo prior to surgery, then some chemo also after surgery, but no radiotherapy. In the end, my cancer was a breast-only issue, nothing in the lymph nodes and nothing elsewhere. 

Have they told you when your next appointment is?

They said the tumour was 2-3cm and that there were cancer cells in the lymph nodes under my arm. But they did say that they would remove it all with chemo and surgery and go on to lead a normal life but then after having the CT scan last week and now having to have a PET scan, I’m terrified of the results. I have the PET scan in the morning at 9.15am. Then I have to wait for my Oncologist to contact me with an appointment. 

x

I hope that appointment comes in really fast!  As for what to do in the meanwhile, any way you could create distractions for yourself, even if only for 20 minutes at a time. I did some strange things at the time, such as calculating how many seconds are left until the appointment, deep cleaning some area that needed no such attention, and then delving into YouTube. None of this took the worry away, but at times it provided enough distraction to get me through the day. And keep talking to us here. 

Thank you I will. It is helpful to talk. I have a great family who are always here for me too. I’m trying to keep busy, I have been out and about over the weekend and today with family and I’ve been out walking my dog too. The time just seems to stand still but I’ll get tomorrow out of the way and keep everything crossed for good results very soon.  

Thank you, it’s good to know I’m not alone. I hope you’re doing well.

x

So sorry you are going through this. It’s definitely a scary time and all you can do at this point is have faith in the medical team that they will build an understanding of your situation and develop the best plan for it. I am also triple negative and have recently started chemo. Not a club any of us wanted to join but there will be lots of support around from us fellow sufferers.