Hello
New to the group
I was diagnosed late December 2021 & told that I would have surgery within 4 weeks. I was diagnosed with 1 ER positive invasive tumor and a probable 2nd, unfortunately the biopsy on my 2nd tumour was inconclusive, so I was told that I would have to undergo a 2nd biopsy for confirmation. Following my 2nd biopsy I suffered 2 cancelled clinic appointments. I was finally seen by my consultant at the end of January & I finally got the confirmation that I did have a 2nd ER positive tumour. I was advised to have a lumpectomy and yet again i was told surgery within 4 weeks. All went quite for a while & I hadn't heard anything either by letter or my breast nurse, I began feeling fed up with waiting I telephoned the hospital only to be told that I had been penciled in for March. This made me very anxious and worried, so out of sheer fear I used all of my savings to pay my NHS surgeon to operate on me privately, on a Saturday 10 days later for a charge of over six thousand pounds. 2 weeks after my surgery, my surgeon told me that he didn't get clear margins and that he would need to operate on me again but he said he would refer me back to himself on the NHS so I didn't have to pay again. 4 weeks later I was back in surgery. My last surgery was on 17th March. I have today found out that my 5 days worth of Radiation does not start until 16th May which is12 weeks after my main surgery and over 8 weeks since my shave operation in March. The total length of time from diagnosis to starting radiation treatment will be five months. Is this generally the length of time that most people tend to wait or have I just been very unlucky time wise? How have other people's experiences been please.
