Starting Trastuzumab any side effects

Hi, any news on your results yet? A little update on the paclitaxel and phesgo injection. Day 3 I started to get pain in my Knees and hips. Quite uncomfortable at times but bearable.Tiredness  also there all the time. It's my first one so not really sure what to expect. Paclitaxel on it's own this week so it may be a little easier. We can do this.Jxxx

Hi J  Good news oncologist rang this afternoon she had my MRI results the lump in my right breast has shrunk from 36mm x 15mm to 19mm x 6mm so almost halved  It’s still showing in my lympth nodes under my right arm but I’ve still got 4 more sessions of A/C and Trastuzumab to go, but now I know the chemo is working I can cope with the side effects.  We definitely can do this.  How’s you are you feeling any better? I’m feeling much better last couple of days but then chemo again this Friday. K xxx 

Hi K, I am so pleased to hear your results that it has almost halved in size. It makes coping with the chemo and side effects a little easier. Like you mine is still in a couple of lymph nodes under my arm but the oncologist hopes these 12 weekly Paclitaxel and trastuzamab will clear them before my mastectomy. I'm feeling a little better just in time for bloods tomorrow and chemo on Friday. Let me know how you get on with the Trastuzamab on Friday. Do you find that after the AC it knocks you off for a week then you have a wek to recover? Are you also having to do the filgrastrim injections? Glad you are feeling better the last couple of days. Jxxx

Hi J yes my oncologist says the same hopefully this last lot of 4 will help the lymph nodes then lymph removal and mastectomy after depending what’s left. I had bloods today for chemo Friday I have found I’m normally not too good for at least a week after, but the last chemo was 10 days then I start to feel more myself just in time for the next lot this time with Trastuzumab is a new one so who knows? Not had filgrastrim injections yet my white blood cells have been ok up til now but who knows as time goes on, good luck to both of us of Friday with chemo mine starts at 1pm what anout you?  K xxx 

Good luck for tomorrow. I hope you don't have too many side effects. Please let me know how you get on K. The next stage with the mastectomy will be hard but it will hopefully get us towards our goal Hun. Jxxx

J, Thanks for your message good luck to you to today for your chemo also,  fingers crossed side effects will be manageable, I’m thinking one step at a time at the moment Chemo first then the rest later it helps me get my head round it all, hopefully if I’m feeling ok I will message in the next few days to let you know how I got on, let me know how you are as well.  Take care speak soon, K xxx 

Hi K, I was a little disappointed as they didn't give me treatment today. I had really bad mouth ulcers with the EC chemo and they had just healed last Thursday but they came back again on Wednesday so they want them to heal. I also have lost the feeling in my fingertips but I already have neuropathy but it made it a little worse. So they felt I should miss a week. Hope you got on okay. Jxxx

Hi J sorry to hear you didn’t have your treatment but I suppose it’s for the best you need time to heal, my treatment went ok completely different to the other 4 I had the usual anti sickness,  then steroid, then flush then chemo and during it all I had the Trastuzumab combo injection in my leg that was not fun took 20 mins to go in and my leg is killing and bruised  And they gave me Zarzio injections to start tues for 5 days to go in my stomach not looking forward to those, you mentioned injections before have you had these? The treatment took longer than before around 5 hours this time, i said to the nurse that it was a good thing these treatments were working as they were the worse things imaginable to go through.  I feel ok today tired but no more then after the usual chemo no side effects as yet maybe they arrive in a few days fingers crossed they don’t, lol How are you feeling are your ulcers any better and have you got your feeling back in your fingertips? Thinking of you K xxx 

Hi k, I am out in sympathy with you about the trastuzamab combo injection. The nurse started putting it in too quickly and I yelped in pain. She had to slow it down but you are right it isn’t too plasant. I certainly don’t find the Paclitaxel as harsh as the EC treatment but like all chemo it is probably cumulative. I really hope it is easier on you too. The injections I had before were calledaccofil and they were stimulate your bones to make neutrophils. I’m not sure what that injection is for hun but I did find if I took it out of the fridge half an hour I used it I found it less nippy Fingers crossed that you have very few side effects. My mouth ulcers are a little better but I still can’t feel my fingers tips. Let me know how you feel in a couple of days. Jxxx

Hi K I looked up the Zarzio injections and it's just another brand of the filgrastrim that I had. take them out of the fridge half an hour before. they made me feel a bit shivery at times and can make your bones ache as they are being forced to make neutrophils to keep your levels up. I know it's daunting injecting yourself but once you have done the first one it gets a little easier. Jxxx