Hi everyone. I was diagnosed yesterday with triple negative breast cancer-with positive lymph nodes. I’m waiting for an mri to check if it has spread. I’m so scared it has. I can deal with it if it hasn’t-but the thought it has spread and there is nothing they can do is breaking my heart. I don’t know what to do. We haven’t told the kids yet, going to wait until we have all of the info before we do.
anyone else have similar?
I joined the amazing Facebook group today for this as well. So many lovely people on there
Hi Lops
Welcome I know it's not the group you ever wanted to join I'm sure but everyone here is lovely and really helpful I was in the same place as you in January little lump I thought was nothing to worry about turned out to be triple negative and so the rollercoaster started MRI,port insertion,chemo lots of blood tests I promise scary as they sound they are copeable and there is always a nurse or consultant to guide you safely through I know it's hard not to worry and nothing anyone else says is really going to help at the moment but know there is always someone about on here even if we can just send you cyber hugs
XxD
Hi Lops. mets do not mean there is nothing they can do, but it does mean the cancer is not curable but rather a chronic condition. That is still a bridge too far, but you do need answers as fast as they can give them to you.
I think you are being wise holding off on telling the children until you know exactly what you are dealing with. They will ask questions and you want to be able to answer them.
I hope your MRI appointment happens very soon.
Hi, sorry you find yourself here. The fear of spread was my biggest stress in the early days of my diagnosis so I just hope you get the results soon and of course I hope it's contained. Good luck
Hi Lops
Welcome to the forum and sorry to hear that you have been diagnosed with triple negative breast cancer. I was diagnosed with triple negative in September 2020 and after having chemo, surgery and radiotherapy I am now cancer free and have been for just over a year.
Wishing you the best of luck with your MRI and hopefully it hasn’t spread.
Best wishes
Daisy53
I love reading good out comes too..we'll done Daisy, I'm just waiting on my radiotherapy appointment next Monday to see how many sessions I'll get..ill be glad when this is all over..had last chemo on Thursday..Big hugs to all, keep busy lops and wait til you've got all information before telling your children, because they do ask a lot if questions..xx
Hi,
Sorry to hear that. I also have triple negative BC. It has spread to the lymph nodes in my armpit, breastbone and neck. CT scan has showed nothing else at the moment, so definitely wait until you get your results back. Even now despite my scan, I worry all the time that it has spread. Its so, so hard not to think that, so I completely understand what you are going through.
I have 2 kids aged 5&6, and because they are so young we haven't told them anything. Just that my medicine is sometimes going to make me poorly. They are the ones keeping me going. Alongside my partner, family and friends. Lean on your support network. You will need them x
Finally received my treatment plan last week and its it my lympth but not gone anywhere else. I was supposed to start chemo this week but now have just had positive covid so will need to speak to hospital Monday.
I just want to get this all started 5 months chemo 4 x 2 weekly ones then 12 weekly. Surgery then radiotherapy.
My breast care nurse was reassuring me through out whilst waiting for results so speak to yours.
I have 7 and 9 year old boys. I told them last weekend once I new what was going to be involved. Just enough details as the chemo will be hard for them to understand.
They were upset about my hair and have not left my side since.
I don't sleep much completely paranoid and nervous about chemo. Now with this pcr delaying my start has made me worse.
I hope you get your results soon as then you get your full treatment plan x
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