Suspicious lymph nodes in chest wall

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I don’t want to scare women but this is a warning what could happen. Was diagnosed in September last year with grade 3 breast cancer and had surgery at the end of October. The breast clinic and surgeon in Basingstoke hospital was brilliant. The oncologist consultant was to busy to speak to me face to face and I had a telephone consultation. Had to decide in seconds either chemo or radiotherapy. Choose radiotherapy which was the lesser of two evils. Waited 3 months for radiotherapy and the department in Basingstoke was amazing and it was a pleasure to go there.  Before I had radiotherapy I had a C.T Scan which showed suspicious lymph nodes in my chest wall. Had another C.T scan 3 months after last one. Still had problem lymph node which is 5mm in size my G.P tells me. Asked the oncologist doctor what was going to happen, told nothing, no more treatment or follow up. Told him I was have problems getting cancer medication because of shortage’s and was told in my case it didn’t matter, Basically I have been sent home to die, my G.P is fuming and is trying to get an appointment at another hospital. I was told last October the tumour had been removed successfully and lymph nodes O.K but of course there was problems in my chest wall which was not sorted. Wednesday evening drank a bottle of liquid morphine which should have been lethal but was not and I was found. To be told on Monday by the doctor when your chest feels tender or you find a lump go to G.P. was not what I expected. In 6 months going from you will survive to no you won’t is a terrible shock.

  • Hi  I can't imagine what you are going through at the moment, but it seems that your oncologist should be reported for his attitude and treatment of you.  You can do this through PALS when you ate feeling more able. Is there another hospital nearby with a good reputation for breast cancer treatment? When will your doctor speak to you about this?

    You said that there were nodes  (plural) and only one node now? Have the others gone? Has anyone taken a sample  of this node to test? Have you had any CT scans, MRI scans,  nuclear bone scans since they saw the node? They should have run staging scans.  I had these after one node in my armpit was positive,  and again a CT and nuclear bone scan last year when I mentioned I had pain in my shoulder. If it had spread anywhere else that would be picked up,  and you don't mention it. That's a good sign!

    By medication do you mean hormone blockers,  because in London at least there is no issue getting them,  and I'm still easily getting my preferred brand of letrizole (Accord) next day from Boots.  Your doctor is the one who prescribes this after a letter from the oncologist.  If you are ER+ it's possible that letrozole would sort out the node.  It was used during the first lockdown when surgery was delayed and many women found that their tumours had shrunk in the few months on it.  5mm is actually fairly small. Was it 5mm in the first scan as well? 

    Have you good friends or family to help you and be with you (you possibly shouldn't be alone until you've a proper diagnosis and some mental health support). It's good that you've posted on here as i'm sure that others will be along too with experience and advice too. In the meantime sending you hugs.  Everyone here could be in your position,  and ar all live that.  Xxx

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Thank you for your reply, it is very much appreciated. I have complained to the customer care team at Basingstoke hospital and they have been very helpful and are going to investigate the situation. My G.P was fuming and is trying to get a second opinion at Reading hospital. Started taking letrizole in December and Boots have been really helpful accessing the medication. I’m not complaining about Basingstoke hospital the breast care team and radiotherapy department have been brilliant but the Oncology department could do better. Just thought I would mention after you think you have finished treatment other problems pop up like suspicious lymph nodes in chest wall. I did expect some treatment but that was not forthcoming, so hoping Reading hospital will be more helpful. 

  • So sorry to read your story, I really hope you get sorted with something.  I was diagnosed in September with 17mm lump, grade 3 stage 1 er+ her2- , I was told id be having lumpectomy and radiotherapy , after lumpectomy I saw my oncologist surgeon who told me that because of the type of  BC and my age (50) that they would send off a biopsy to America and get an oncotype DX score done to decide if I needed chemo or not..my score came back at 31 so I was told it had a high risk of returning and chemo was recommended with radiotherapy..I take it they didn't mention that to you either. You should look into it at the other hospital see if you fall into the category for it. God bless you I hope you get a good outcome..xx

  • I really appreciate your reply. My tumour was 4cm in size which was a grade 3. I had a partial mastectomy and reconstruction. A biopsy was sent to America and my score was also 31. Was offered chemo or radiotherapy but had to decide over the telephone in seconds. I didn’t know what to do so choose radiotherapy but had to wait 3 months after surgery for radiotherapy treatment. I didn’t realise 31 was considered high. I’m hoping I can get an appointment at another hospital but it may be too late now. 

  • Omg, I was sat down and explained everything , it sounds like your oncologist is too busy to bother about you or anyone else..I'm so angry . I was told if it came back borderline 16 or 17 then I could choose what to do but if it came back anything higher than that then I'd deffs have both treatment because of the high recurrence rate at 31 ..have a good chat to someone in the oncology department about this score. Someone with more compassion..God bless you silverline. Xx

  • Thank you for the information this evening. The oncologist in Basingstoke wasn't interested. I only spoke with him on the telephone for a couple of minutes. He never explained the score to me just said chemo or radiotherapy and I chose the easiest option. I didn't realise I should have chosen the chemotherapy.  I even had to wait months for the radiotherapy. I've got to a stage where I'm past caring. The effort to get proper treatment has been emotionally exhausting.

  • So sorry you are feeling like this, I'd probably be the same, if your not given the right information then of course you'd choose the easiest option  I'd be putting a big complaint in there, how many other people has he done this to,..let us know how you get on with other hospital xx

  • Thank you for your support, it's so helpful. This morning I have  sent an email to PALS Basingstoke. Hoping to get a reply next week.