New!Devastated/Questions

Glad everything went well.  At our hospital, if you have regular appointments like Chemo, at the reception they will give you a ticket for approx £2 which will cover however long you need to be there.  May be worth asking at yours! x

Beautiful reassuring words and good to hear about a long term survivor of sixteen years. Inspiring..we could all get there xxx thankyou happyfeet1 x

Thanks for the information,  I'll definitely ask about that x

Good Morning all, Just a little update....

I received my appointment yesterday for Thursday 7th April 2022, This appointment is hopefully for my treatment plan i'm not sure. I had MRI 3T scan on the 25th March so I think they will have all test result to hopefully give me a treatment plan. 

i've still no idea what route it will be, feeling very nervous & a little scared, this past week has been like for many others when receiving the news very hard & surreal!

Hope everyone is ok ? Love Honey xx

Hi Honey

I had my ct scan last night and I'm seeing the oncologist tomorrow. Should get the treatment plan and I've had an appointment come through for an echocardiogram on the 11th April.  Fingers crossed for both of us xx

keeping my fingers crossed for the both of us too! xx

Hello everyone how are you all doing ? I just thought I would pop on my post to update you all, so yesterday 7th april 2022 I had my MRI result appointment with surgeon. They did find a couple of lumps in my other breast so I had an ultrasound there and then but thankfully they think they may be benign tumours so no action on those but will follow up with another MRI in 6 months. 

Re other breast i'm grade 2/3 Her2 positive ER negative & I will be having a mastectomy  I will be going back on the 19th April to be booked in on the list ready for surgery. we won't know if I will be having chemo or what stage until they do surgery to get the full picture but it's highly likely I will chemo due to Her2 positive!

So I guess I will be waiting for surgery date looks like middle of May! good job we are moving as this will keep me busy!

I've always worked full time , I am self - employed but unable to work due to the place where my clients live, they have covid! so i'm unable to work incase I catch it ( i've not had covid ) . I also work for a company on the bank when i'm needed but I had regular non contracted hours but due to staff & clients having covid i'm unable to go there! I'm a bit unsure if I can get any financial help ? does anyone know if I would be entitled to anything ? I will ask on another thread too! 

Thank you for any guidance & Advice Love & Hugs Honey xx

Hi Honeypot, mixed bag of results from the sound of it, good that the other side seems just to be enjoying growing random benign lumps (I have similar stuff going on in my other breast, cysts and ‘historical changes’ I think). Glad that you at least know more about the nature of the beast and will hopefully soon have a date for surgery. 
Re financial help, I would recommend phoning the Macmillan help line for advice. My situation was different as I was a teacher but I did phone re phased return advice and they were very helpful. They can advise re benefits, grants etc.

Good luck with it all, love and hugs, HFxx  

Hello Happyfeet! I’m currently waiting for response from Macmillan I’m sure they will be a great help. 

Yes I have a clearer mind now of what’s happening which has eased all the waiting & unknown questions I had. I’ll try to keep busy until surgery date & enjoy my time feeling well as I’m guessing it’s not going to be an easy ride but doable!! keeping a positive mind. 

Thanks Happy & Hope your doing ok ? Honey xx

Hi Honey, not the best news for you.  I'm HER2 + as well but I'm having the chemo first,  6 cycles starting probably the week after Easter.  They wanted me to start on the 12th April but my daughter is getting married on the 13th so my decision to postpone till after Easter.  I'm having a locator clip put in the lump today so if the lump disappears after chemo they'll know exactly where it was . From a surgery point I'm having a lumpectomy and breast reduction ( l have very large breasts) with a reduction of the other breast further down the line.  I've not had the results of the ct but the oncologist is phoning me on Monday, fingers crossed there is no spread.  I believe its harder to get financial support if you're self employed but I'm sure macmillan will point you in the right direction.  I hope your move went well , keep us updated xx