New!Devastated/Questions

Hi Honey 

My original diagnosis letter to my GP  in November said " screen detected 8mm M4 T5 U5  DCIS associated grade 2 IDC AX1"

The M/T/U scores all related to how the original then diagnostic mammograms and ultrasound looked in terms of being confident that it was BC The T is the diagnostic mammogram rather than screening one. I was told ahead of my biopsy results I had early breast cancer as they were certain. 

When I had my surgery they were spot on and it was exactly as anticipated with clear sentinel node and no LVI present ( the AX1 bit) 

I had one surgery  5 sessions on RT and now on Anastrozole for 5 years as my BC was very hormone receptive but HER negative. My treatment was super quick and I'm now back at work etc as my RT finished early Feb

It makes sense they want a breast MRI as your screening was not as confirming  as mine yet your biopsy confirms BC so they want to be as clear as possible to formulate your individual treatment plan 

Hope that helps and best wishes xx

You're welcome and I'm sorry if I may have scared you unnecessarily with the M1 explanation. It appears there are other definitions out there regarding mammography being another meaning. In my case the M1 meant it had metastases and the U meant uncertain/undetermined until further investigation. Apologies. Might be best you ask those questions of your breast cancer care nurse. They're a lifeline too as you go through these next few weeks.

I forgot to sign off with my name...though I don't mind the 'Brainy' name, lol.

I'll continue to keep you in my thoughts as you start this journey, particularly as you have other health issues to consider. Your consultant/surgeon will take all of this into consideration and may get in contact with your gall bladder surgeon to discuss options at your request.

Sending peaceful thoughts and hugs .

Kathryn x. 

Also meant to say I sympathise re gallstones as I had them 10 years ago and the relief after having it removed was huge. I too lost weight (1 stone in 6 weeks) as couldn't eat and ended up paying privately as my op was cancelled twice. 

Incidentally shoulder pain can be associated with gallstones as there is a phrenic nerve that runs to your right shoulder blade I understand . Not sure if that's the shoulder you have problems with but I'd been having shoulder pain for some time and never connected the two until it was explained to me! 

Please don't worry Brainy,  I'm grateful for your response, there is all kinds of different terminology you didn't worry me I wouldn't want you to think you had xx

sending hugs your way xx

Thank you for Information & yes that helps a lot being able to chat on here had made me feel much clearer. xx

This may help for clarification, and as you generate your questions with your next appointment with your consultant, or as I said before, seek clarification before your next appointment by phoning your BC care nurse. Mine always encouraged me to call with any questions or concerns I had, and sometimes still do have, from time to time. 

Hi Honey please dont feel alone we are all here for you sweetheart, it's a horrible horrible thing to sit there with the dr and hear you have Breast cancer I shook for a hour.. driving home on my own was horrendous I kept saying iv got cancer.. then I thought how the hell am I going to tell my only son! But I did and we cried together and that was that.  Since that he has been soo supportive andamazing and is coming to see me on my 65th birthday from Newcastle I live in Norwich. My time of diagnosis was similar to your.. I woke up on Christmas morning with a totally inverted nipple so I knew something wasn't right I was diagnosed on 2 February and have already had my Masectomy and reconstructive surgery on 23rd March and honestly hand on heart it was not as bad as I thought it was going to be and I'm recovering really well  my lovely friend of 17 years was also diagnosed 5 days after me and we are fighting this together, she is only 40 with 3 daughters and she has a 6 month old 1st grandson.she is having a double Masttomy on 5th April and I'm there for her every step of the way. You will find friends and family a Absolutely wonderful support and they will get you through this I promise. 

Not brave at all, trying to stay positive, most days feel like I pretend it's not happening. Can do that on 'good days'. Meltdown last night, couldn't sleep with all the 'what ifs' in my head. Brighter again today, try to stay busy, difficult in retirement!! X 

I've had a similar diagnosis grade 2 invasive ductal cancer Er+HER2+. I've had the MRI and am waiting to see oncology. No timeline on this so im just sat around waiting and worrying about it all. What's the normal time wait for this? Been told l need a ct scan but they are very busy ,also need a clip? put on the tumour before l have chemo and I'll have surgery further down the line after chemo. Two weeks prior to this l was told it would be a lumpectomy and radiotherapy so feel pole axed by the change in plan 

The 'clip' is a marker so they can find the lump if it shrinks a lot, and/or to assist surgeon to locate easily in surgery. X Jo