DCIS

FormerMember over 3 years ago

6 replies
473 subscribers
501 views

Hi, I’m new on here. I had a subareolar duct excision at the end of January after having a bleeding nipple since last July. Three mammograms and three nipple ultrasounds were all normal, however I’ve recently received the news that I have DCIS, high grade and I’m going for surgery tomorrow for a re-excision for clear margins. Since my first surgery I’ve had a lot of pain in my nipple and breast has anyone else experiences this and if so how do you treat it? Paracetamol doesn’t touch it. I also suffer from severe Crohn’s disease and have had 6 major bowel surgeries in the past few years, all with complications yet despite what I’ve been through I’m more scared about this diagnosis than anything else. I can’t seem to hold it together, crying, not sleeping, angry with everyone and very scared. Worst of all my memory has become terrible over the past few weeks, just forgetting everything, it’s frightening. I’ve never been like this and know I shouldn’t be as from what I understand DCIS has a very good prognosis and initially I was very positive but now I just don’t feel I can take much more. I care for my autistic daughter and now my husband who had a stroke last year and is now retiring on I’ll health. I had to retire through I’ll health also 4 years ago. I’m 51. I’m not after sympathy, just want to know if others felt like this, normally I’m very stoic, this is not like me whatsoever! Thank you

Rose15b over 3 years ago

sorry to hear about all your going through, it seems a lot even without the diagnosis. I was diagnosed with DCIS high grade in November. I had lumpectomy 5 weeks ago with clear margins and am having radiotherapy next week. I have had all the feelings you describe and have been told it’s very normal. The emotion just hits you out of nowhere some days doesn’t it. Please don’t feel on your own. We are all fighting our cancer in different ways and you will find lots of support on here. Ask away about any questions you may have as everyone is very helpful

Sending best wishes x

FormerMember over 3 years ago in reply to Rose15b

Hi Rose, thank you for your reply, at least I don’t feel alone. Good luck with your radiotherapy xxx

Grogg over 3 years ago

I'm almost 7 years on from my diagnosis of high grade DCIS. Click on my name to see my journey. What you are feeling is perfectly normal. It's a big deal, regardless of type, being told you have cancer. You don't need to down play your feelings here , it's a safe place to let them out xx

Rose15b over 3 years ago in reply to Grogg

Hi Grogg

Thank you for sharing your journey so glad you have had good news now. Sorry to hear about your husband so tough for you both.
could you please tell me what NEDDY is please ?

FormerMember over 3 years ago in reply to Rose15b

Hi again, It is great reading the support from everyone. Everyone's journey is so individual and everyone is so very generous with their support. I am three weeks post op mastectomy and I am having to go back into surgery Wednesday as they haven't got clear margins. Now I am happy to have the surgery (of course) but confused that after having a mastectomy, I thought there wouldn't be anything left to take. I am having to have my scar re opened. I was diagnosed with DCIS high grade. x

I too wondered what NEDDY stood for

Grogg over 3 years ago in reply to Rose15b

NEDDY is no evidence of disease

Sorry they going back in . Hope Wednesday goes well, such a stressful time xxx

More from this forum

DCIS