Hi I've just been diagnosed with a mixed invasive ductal and lobular breast cancer..and wanted to see if anyone have had the same diagnosis. Got my surgery on the 1st of march and a bit scared. X
Hi Leanne Flower, I was diagnosed with a large invasive lobular cancer and they also found dcis . I think the treatment for the two types of cancer are the same . I had mastectomy (due to the size of tumour) and having small breast. Lobular cancer I’m led to believe is a lazier cancer .Mine was hormone receptive which means after treatment finishes I will taking estrogen reducing medication for 10years . I am currently having chemotherapy but everyone’s treatment plan is different so hopefully you will know more when you have spoken to you’re breast care team. Not everyone needs chemotherapy.
So sorry you find yourself here but you will get lots of support from the lovely people on this forum so don’t be afraid to ask questions, someone will always be along to answer questions and share their experiences .
Thanks missi I hope your coping ok with chemo I'm having a lumpectomy and some nodes taken from my underarm. They also said I will be having radiotherapy but don't know until a few weeks after the surgery if I'm going to have chemo. I'm just feeling so tired all the time and not sleeping waking at like 3 in morning after 2 to 3 hours sleep then am tired all day. still working at the moment on 2 x 12hour nights a week so that doesn't help with my body clock.
Hi Leanne welcome to this forum but sorry that you have had to find us.
Lobular Cancer grows in a Linear way, developing in the lobes of the breast and often looks like a long spider leg with little fingers as opposed to a lump. (Hope that makes sense) That's why they won't know exactly whats what until they get that out, how much of an area is affected. My Lobular Cancer was small on the scan but double the size when removed, but still reasonably small.
The DCIS forms in the ducts of the breast and will form a lump so again they wont know until they get it out how much is affected. They always take the Sentinel Lymph Node which is known as the 'soldier' node and if any nodes beyond that one are positive then those will be removed as well. All of this will get sent off for testing and that's what the wait is for after surgery to determine what stage and grade the areas removed are at. All of this will enable them to decide on the best treatment for you which may, as you say, or may not require chemo . This is when you will get all the results together and should have a plan for the next stages of your treatment plan.
Hope that all makes sense? The information that will be coming your way right now will be making your head spin I'm sure. I imagine you feeling tired is normal despite it feeling anything but for you. Working, not sleeping, feeling a bit anxious and fearful of what might be to come, that sounds to me like a sleepless combination if ever there was one!!
What I would say is that we are here, and will be here for you every step of the way, so you hopefully never feel that you are alone in this.
I too worked 12hr shifts up to my operation although mine were day shifts. I can fully understand how the night shifts mess with your body clock though as have previously worked nights and wouldn’t want to go back to working them. That with the added stress and worry of diagnosis, waiting for results and operations all takes a toll on our bodies, it’s very draining, there’s no wonder you are feeling exhausted .
Thanks Gail that was exactly what I wanted to know and we'll explained. I think they said 2cm is the size but like you said it could be bigger as my consultant thought it was bigger when she examined me there was a bit of a mix in the size as the ultrasound showed it at 1.5cm but the mammogram showed it at 3cm so had to have a MRI and that said it was 2cm lol so who knows !!!
