DCIS & mastectomy

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I’m 51. Had my.first routine mammogram 5th November and was called into the Breast Clinic due to calcification 22nd November. They did a biopsy. Nice nurse said I should expect some treatment. . Returned 3rd December & told it is DCIS. High grade & lots of it so I would need a mastectomy. Had further biopsy (fibroid) & MRI the following week. I was terrified waiting for the MRI results but they told me a week later that all was as they thought & a mastectomy should be all I need. . It is weird to be relieved that I am “just” having a mastectomy. I am now in pandemic/mastectomy limbo of both dreading the op but desperate to have it in case the pandemic takes off again. I feel like I am on a seesaw & just going up & down constantly at the moment. When will my head stop spinning?  I’m lucky to be very busy with work but hit a wall energy wise every day. So inspired by the amazing women on this forum. Thank you all of you  You help make me feel that this brain twisting experience I am having might be normal xx

  • Hi your brain twisting experience is definitely normal.  I was also 51 when I was diagnosed in December 2020 and like you was elated when I was told it would be mastectomy or lumpectomy with radiotherapy.  It was just a relief to know it was treatable and that it wouldn't take too long before I was cancer free.

    Wishing you all the best on your journey towards being cancer free.

  • FormerMember
    FormerMember



    Hi Greatcrestedgrebe

    i am going through exactly the same thing although a little older at 57

    i noticed a small amount of nipple discharged which prompted me to contact the doctor, who referred me straight to the breast clinic. Then after a mammogram, ultrasound and biopsy, 5 days later BOOM I’m told by a lovely doctor I have DCIS! Because of the location, effected area and I’m only small (34B) it would mean having a mastectomy. I burst into tears and was in total shock as it was the last thing I expected. I didn’t hear much else at that consultation other than I would qualify for an immediate reconstruction and after chatting to my Brest cancer nurse for a while was sent home with a bundle of information saying they would be in touch to discuss next steps 
    I had about 3 weeks of limbo with my head in a total spin, like you was busy at work which helped somewhat but am finding it really difficult to concentrate some days. Work are great allowing time off for appointments etc  I have a big family and only my daughter and sister knew what was happening so I had to go round and told them the result individually (in my pecking order!)  it was difficult as I felt so sorry for them not knowing what to say Disappointed we had lots of hugs. A few close friend and work colleagues know but I’m not the type of person who feels the need to tell the world atm, maybe I’ll do that after but right now it’s about my and my close family’s feelings. Everyone is different though and you will do what’s right for you  

    I have surgery NYE….. at least I can start 2022 cancer free

    i does seem weird saying that as I don’t feel any different 

    I went to my follow up appointment this week and can’t believe how different I feel! My surgeon went through the whole procedure (I’m a wuss but even the hubby said I did ok) showing me implants, diagrams and photos of others who had the same treatment, We discussed the analysis they would do on the tissue and lymph nodes (I’m having approx 3 removed) and the chance of the cancer being invasive and what would happen if it was, this could result in Chemo or radiotherapy, but will cross that bridge if it comes! I asked questions (which I suggest writing down as I would have forgot if not) and he answered them all. One thing I was worried about were the chances of it developing in my other breast, he assured me it was only slightly higher and we looked at my mammogram images whilst discussing it and I will have regular check ups so feel better about it now. After an examination and discussing size of implant with another doctor, my surgeon said his goodbyes and them I had a nice long chat with the BC nurse My husband came with me to each appointment which really helped so recommend you don’t do things on your own 

    i feel so much more positive now, sleeping better and can sort of focus on other things instead of it being the only thing in my head! I have 2 good friend that have been in the same place a few years ago, both different stories but they totally get where I am and where I’m going 

    I do worry more about the pandemic, we have always had a big family get together at mine and after last year we were all excited to make up for lost time  I have 15 coming this year, I have decided to still go ahead as we are older and my less likely to be mixing in large crowds prior to Xmas day Everyone is going to take a lateral flow test in the morning and no negative result no entry! I will be opening windows throughout the house and will try to be cautious  I will definitely be shielding after Xmas day! 

    im still trying to convince myself it’s the right choice as I think for me the distraction outweighs the risk 

    I think our heads will be spinning for a while but I am sharing my story to help you know that you’re not alone, we are all on our version of the same path and we will get to our destination, our personal road just might take a detour now and again Slight smile

    I found it’s best done at your own speed, whatever feels right will be right for you 

    It is I wish you all the best for Xmas, New Year and the journey you are about to start

  • Thank you Natts. That really helps. Stories are so important aren’t they?  The Breast Clinic I am attending won’t let anyone come in with you. That has been hard. I’ve not really had much explained to me but I’ve read a lot & called with questions so I think I know what I need to know but I don’t think I’ll ever be ready. 

    Telling people is the worst isn’t it?  I think other peoples reactions is the hardest thing. I manage a small team at work so I have been open with them. I have told my closest friends & family but I think I’ll stop there for now. It is hard to know what to do sharing this wider with people I know professionally. I want to own it & not be ashamed but it is taking some processing for sure. 

    im not going for reconstruction & the tone from the clinic makes me feel like I’m having a tooth out. I can’t decide if this is a good or bad thing. 

    I just need to get on with it. I’m staying flat & planning my first ever tattoo. I have hippy friends so there may be a ceremony to celebrate my new stage of womanhood. (Love that)

    Good luck Natts. I hope all goes well & you have a lovely Christmas xx

  • Hi Gcgrebe

    I am in similar situation to you and in a similar time frame.  I had a routine mammogram in Nov and was called back for assessment due to flecks of calcium, turned out to be a larger high grade dcis but also a smaller invasive carcinoma.  I was initially told I would have a mastectomy first but they have now changed their mind and are doing chemo first starting on Jan 3rd. I will still need the full mastectomy after.  
    I have all your rollercoaster feelings and work has been a godsend for me as it gives something else to focus on but like you I have also been exhausted - I guess it’s all the mental energy dealing with the stress and anxiety. The uncertain covid situation is not helping either.
    I too have only told my close team at work and my immediate family and two friends so far but have others to tell so am just gathering my strength for a beat as I seem to need to be comforting people when I tell them! 
    I have a while now to decide about resconstruction as likely to be 6 months before my op and have no idea what to do - I love the idea of a ceremony to celebrate a new beginning either way.  

    Thank you to both you and Natts for sharing your stories, even though I have supportive people around it can still feel very lonely and it really helps in a wired way to know you are not the only one in this totally horrible situation. Good luck on your journeys x

  • Hi, 

    I rber post diagnosis day, it was sheer horror and just the worse time. Everyone here can empathise. U r still in shock and trying to make sense of it all. Waiting is just horrible..

    It will ease up once you get your head around each phase, you won't feel like this forever. Telling ur family does lighten your load as they can then support u, lean on your medical team.

    I am post op and waiting to start chemo Jan. You take care and ask anything if u need to know.

    Cx