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Hi everyone.  I’ve been diagnosed with G2 pleomorphic lobular carcinoma ER positive, PR/HER2 negative, and having surgery on Wednesday 15th December.

i don’t know what made me examine myself a few weeks ago, and have no idea how long the lump had been there before that fateful day.  Saw my GP, who referred me to the breast clinic, and I was booked in very quickly.  I just thought if it’s a false alarm then fine, and if it’s more sinister then it is what it is and I’ll deal with it.  That’s been my attitude since the diagnosis, and I just want to get this over with and move on.  if it means a mastectomy then so be it.

Admittedly, I surprised myself at how calm and pragmatic I’ve been, as I can totally understand the anguish of so many other ladies who have found themselves in this situation. I wish you all the very best on your treatments, and hope you are well supported during these journeys into the unknown.

x

  • Hi Eileen, 

    Is it a day release op for your lymph nodes clearance on Tuesday? I’ll be thinking of you. 

    It is a scarey notion that the cancer is evasive and so from that point of view, it’s good if they do scans to be sure it’s not hiding anywhere else. At least then you can be fully assured that it is all being treated. 

    I totally get that re chemo and fully admit I’m hoping to avoid it myself. So many others here have got through it though and I guess we just have to take one step at a time. Focus on getting through Tuesday and I’m focusing on getting to my results apt. 

    Yes, I think the covid situation has really impacted the hospitals generally, but some areas are worse hit. 

    Sending you a virtual hug - Mickey xxHeart

  • Thanks Mickey.

    Yes, it’s a day surgery again, so in at lunchtime and out early evening.  

    I’m blown away by the fact that they do this …. and it would still have been day surgery even if I’d had a mastectomy plus reconstruction.  How marvellous that we live in these times of advanced technology.  In the past we’d have been in hospital for days, and without the reassurance of all the scans etc that are available now.

    it will be another couple of weeks before I hear what’s planned for me, which will be dependent on what they find this time.  It’s pointless dwelling on it, so I’m concentrating my thoughts and energy on other things.  I’m determined to learn how to read music, and also learning a new craft during the recovery time when I’m unable to do more physical things.

    As you say - one step at a time.

    Speak soon

    xxx

  • I love your positive plans to learn to read music and a new craft. 

    I will be send positivity your way tomorrow and thinking of you Eileen xxHeart

  • Hi Eileen, 

    Just wondering how you are feeling today? I’ve been thinking of you and hope you’re ok. 

    Virtual hugs Mickey xxHeart

  • Hi Mickey

    Thanks for your concern.

    I’m feeling very frustrated today, because my op was cancelled yesterday, and has been rescheduled for 12th January.  I was due to arrive there for 1pm, but at midday received a phone call to say they couldn’t go ahead due to not having received the results of my covid test.

    In line with hospital policy I had the covid test there 3 days prior to surgery, which is what happened last time I went in.  No idea what happened, but someone obviously messed up.  It was not the fault of the breast cancer team, and the nurse told me it had never happened before, but seemed to be the hospital's covid testing dept at fault.

    I’m thankful it was only delayed by a week, but was so very annoyed and upset, as I was totally prepared for the surgery - starved, psyched up and ready to go.  Keen to get it over with.  Also, my daughter and her husband had rearranged their work schedules to take me there and back, and to care for me afterwards.

    Looking on the bright side, at,least I could tuck in to some food at lunchtime.  I was starving!

    I’ll have to have another covid test beforehand and hoping they’ll get it right next time. 

    xxx

  • Oh no, I’m really sorry to hear that, what a nightmare. Makes you wonder what they’d have done if you were on route to the hospital already. I guess again different hospitals have different practices, but surely a test on the day would have been sufficient under the circumstances??!! 

    keeping everything crossed for you. XxHeart

  • I suggested doing a test when I arrived, but they told me it must be 3 days before the op.  No more no less.  To make things more frustrating, I’d asked if I could have the covid test when I was there for my clinic appointment on Thursday, and the covid testing people refused.  At least they would have had the results done in time.

    Pointless beating meself up about it all, as it’s out of my control.  As is everything else.

    Off to do some craft work now…..

    Take care

    xxx

  • Your craft work sounds an excellent idea - enjoy xxHeart

  • Sorry to hear that your operation was postponed.  

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  • Thank you Daisy.

    The hospital just phoned me to say they’venrearranged the theatre list to put me first, to ensure it doesn’t get cancelled again.  That’s reassuring.

    xx