Hello everyone,
I don't really know where to start but here goes.
I was diagnosed 6/11/20 with invasive er+, pr+, her- breast cancer with mets to lungs, liver and bones.
I'd been in ridiculous pain, mostly in my back which I'd assumed was work related as I'd had similar 10 years ago. Physio and meds weren't working. I couldn't sleep and was losing weight, occasionally being sick too.
I'd noticed a lump over 10 years ago which the gp put down to 'nodular breasts'. This same lump was bigger and painful through feeding both my children (now 9 and 10). Early 2020, just as the pandemic was kicking in I really noticed it was bigger. But, too scared of the thought of being in hospital alone I put it to the side of my mind and worked away in my nhs job that I love throughout the year until I ended up off with back pain in October 20.
My husband forced me into making the gp call (after weeks back and forth about the back pain and no sleeping and never being invited in for a check up) after I threw up my breakfast one Sunday. I saw the gp the next day, she referred me to the breast clinic there and then, my appointment was made for the following week.
2 biopsies, bloods, scan, full body mri, ct, muga, mamo later and I got the news.
I was not surprised at it, I knew it wasn't going to be good news. What I was relieved to hear was they had a treatment regime to try. After just a few weeks my pain had gone, I had more energy and I felt more normal again.
1 year on I'm 3 scans in, each one an improvement on the last. However recently my mood has been getting lower, I've been feeling depressed around 1 month now. Not sure about antidepressants and my meds (especially letrozole and zoladex) and am not into venting my feelings as I font want to bother anyone with them. I'm also running up my credit card as I've reduced my working hours as I physically can't do what I did before. I don't think I'd qualify for any financial support.
Just back from a week in the sun with my husband and kids and felt like a spare part unable to join in with the fun stuff for fear of hurting my back. I sobbed watching everyone having so much fun at the water park. But tried my best to hide it from the family so as to not ruin their good time. It was meant to beva holiday making memories but I already feel i wasn't in any of them.
Anyways,
That's me, my journey. Very greatful for fast action from the NHS. But do feel I've been left to it, nobody checking in on me.
Anyone have experience of depression in a similar boat? Also, I've never gone public with this as I worry about being a label- the mum with cancer. I wonder if it would make things easier or harder to put it out there?? Any comments appreciated!
If you've made it this far, thank you for reading. No need to comment but it feels cathartic to gey it all out.
Thanks x
Hi there
i was so sorry to read your post but well done on writing it and getting your story out there.
It sounds as though you have had a bad time but your scan results sound really encouraging.
Have you thought about having some counselling or speaking to someone at Macmillan ? Sometimes it can help to unload onto someone neutral. Does your hospital have a drop in centre where you can go and get a cup of tea and a chat?
One of the side effects of Letrazole can be low mood or depression so maybe have a chat to your oncologist. I have read on this forum that different brands of the same drug have less side effects for some people..Maybe worth talking to your pharmacist when you get your next prescription.
I’m not sure what you meant about going public…. Do you mean to family and friends or a wider circle? Maybe if more people know they will be able to support you.
MacMillan should also be able to advise you if you are entitled to any financial help if you contact them.
Sending you a virtual hug
Hi There
Sorry to hear you are feeling this way , but it is natural considering what you have been though.
I have recently been diagnosed with breast cancer and had a mastectomy with further treatment to come.I am currently taking citalopram for anxiety.I have no intention to stop taking it as it really helps with what I am facing.I would speak to your G P or ask for it to be bought up at the next Multi team meeting.
Most of my friends know as I run my own business so had to make some big changes . you will find support but also some insensitive comments.People mean well but don't know what to say.
I hope your low mood can be improved as there is treatment you can be given to help.
Take care xx
Hi Redber77, really sorry to read your story, BC is a scary place to be. I hope I have read your question correctly re going public: I have not told anyone about my BC, none of my family or friends know, only my husband who looked after me through treatment and still does as I am not back to normal whatever normal is. I finished treatment and like you, felt like I had been hung out to dry, I was lucky enough to get on 2 x moving forward courses one run by Breast Cancer now and the other by Cancer support uk, between them they have pulled me out of my hole and helped me to face my new life. I still feel I am living a lie but I do not have to put up with stupid comments like "fighting cancer", or get labelled, only someone who has cancer can understand how I feel. So I don't know if my comments have helped you, I hope so, look for help, it is available, try anything offered, keep posting here as this place is full of amazing women. Love from Ann
Hi there,
Thanks for replying. I've no idea if there's a centre here, I'll have a look into it.
Yes, going public meaning the wider world. Only my close family, friends and colleagues are aware. But a year down I'm feeling bad about not telling the truth when people ask how I am and lying to them.
Luckily my husband is a pharmacist so I often discuss the medication with him. I'm waiting for a reply from my nurse about antidepressants.
Virtual hug greatly appreciated
Thank you for responding and I hope you are having a positive experience with your care.
I'm not overly comfortable with my gp prescribing things for me, they've not been very thorough in the past but I'll definitely ask my consultant about them. It's good to hear they are helping you.
At least you have someone in the know re medications…. That’s a bonus!
You take care and if you ever need to chat or just vent message me.
Xx
Hi Ann, thank you for the reply. It was really hard telling those who do know, but I've been very very greatful of the support. But with having small children and work to keep in the loop I felt I had to tell those people.
My husband has been great, ploughed right into the pharmacist role and made sure all my prescriptions have been on time. But not the best emotionally. He doesn't understand the down times as thinks being positive is the only way. So I keep a lot from him too. I will definitely seek out some groups.
Huge hugs to you too. I couldn't have coped without support from my family especially my mum and sister. But yes, nobody understands where we're at.
Whatever cancer throws your way, we’re right there with you.
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