HypERparathyroidism and BC

Hi, I also have complex health issues and breast cancer. I have some endocrine issues but not HPT. I do however have a Facebook friend who runs Hypoparathyroid UK and they might be worth speaking to. A lot of people develop hypoparathyroid as a result of cancer treatment so it’s something your oncologist will be well aware of. Not all breast cancer requires chemo - mine doesn’t, and anyway they devise your treatment plan for you as an individual. Try to take one step at a time and try not to project too much into the future. The first step it to get this lump scanned and biopsied to determine if it’s breast cancer, and if so which type. Breast cancer is usually very treatable but surgery is usually the first step. You’re in good hands - the breast care clinics are typically excellent. Best clinic in the hospital I reckon (and I’ve been everywhere except the prostate clinic!)

Hi Yorkshirelass9

Sorry you have found yourself here-  If you do find you have breast cancer, only 1/3 of women have chemotherapy, so it is not a given that you would need it. There are many different types of breast cancer , and so many factors in the whole diagnosis, along with many different treatments now. Chemo is a funny thing, and whilst there are side effects, most are manageable, and the oncology team work hard to make sure that you have the best combination of treatments for your diagnosis. Many people who have chemo are already sick, and most people manage their treatments - but your MDT team should be aware of your condition and will not offer you treatments that would cause more harm than good. For most breast cancers, surgery is the cure and everything else is to help stop it coming back, most women have surgery either a lumpectomy or mastectomy, again depending on the type and extent of the cancer.

Im sure other people will be along shortly to offer you advice, there is an Ask an Expert link on the top of this site and it maybe worth asking them about your condition? Have you spoken to your consultant for your current condition about other patients they have had and how they have dealt with a breast cancer diagnosis?

Hope your appointment goes well

Jo xx

Hi Yorkshirelass9

Welcome to the forum and sorry to hear that you are facing a breast cancer diagnosis. Breast cancer is very treatable these and if you do need chemo while I won’t say it is easy it is doable. Your medical team will do everything they can to make sure you have the best treatment possible for your situation.

Try to keep yourself busy while you waiting for your results on Friday.

Wishing you the best of luck with your treatment when you have it.

Best wishes

Daisy53

Sorry brain malfunctioning, that’s parathyroid.org, Parathyroid UK that my friend runs. It supports all sorts of people with parathyroid disease both hyper and hypo

-Ana-  Thank you for replying. It sounds strange,   but it’s so reassuring to know there are other people out there like me.  Your comment about prostate clinic made me smile, which is a first today. I’ve been making myself shake with worry today. Thank you .

jowoomot Thank you so much for replying. In my current state of terror, to panic, to calm, to terror … I hadn’t even thought of asking my current team. Brilliant idea. You would definitely think they would have had patients in a similar situation. I will email them tomorrow. Although I’m a bit odd even in that category because I’m kind of with two teams, one in London and one in Leeds. Which is good because I can email them both I suppose .

Oh yes, I know that feeling. I feel constantly sick with anxiety. I have a liver appointment tomorrow- nothing to do with cancer and I’ve had problems for 6 years with no proper diagnosis, so of course my brain is now going there. Why am I scared of diseases I’ve vaguely heard of more than the actual breast cancer I’m fighting? It’s barmy. I think my GP thinks I am anyway. Mastectomy in 12 days time…

Daisy53Thank you so much for your reassurance. I know that I should distract myself, but my children have all left home now and I’ve been fortunate in being able to retire early from work because of PHPT. So have no work to go to and, to be honest, daren’t go out because of COVID. Only to see my daughter who needs our support. But it does help to have some reassurance from someone who has been through it.

-Ana-  When were you diagnosed? I’ve gathered that there’s not much time between diagnosis and op? Are you prepared practically? I feel that if I can focus on practical things that helps me feel I’m at least doing something.

And I know what you mean about over thinking other things. I got myself into a state when I had a FNA on my throat last week, which was after seeing the GP and speaking to another one about BC. In the grand scheme of things, the FNA wasn’t really much, but it kind of became my focus. I’m guessing you’re doing the same with your liver appointment. It kind of takes your mind off things doesn’t it?

P.S. I’m on the two UK Parathyroid Fb  groups, so have posted on there. Good idea, thank you.

Hi, I’m complicated ;) I was diagnosed with invasive breast cancer grade 1/2 back in June, after a mammogram. I was booked for Wide Local Excision and biopsy of sentinel lymph nodes on 10th August. However days before I’d been sent for a pre op MRI and the found DCIS pre cancer in the right breast. So the op was cancelled. Another biopsy found LCIS pre cancer in the right breast so bilateral WLEs were booked. That happened about 5 weeks ago in 28th September. Two weeks later I was told pathology found extensive invasive breast cancer in the right breast and a mastectomy was recommended. That’s planned for 12th November. So it’s been a long convoluted journey but due to my illness not nhs waiting lists