Just Diagnosed with DCIS, need mastectomy

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Hi

ive been diagnosed yesterday with DCIS-in situ in the milk duct. Having another biopsy as there is possible invasive cells going into surrounding tissue. Will need a mastectomy within 4 weeks regardless.

As you can imagine I am devastated and my head is all over the place and I’ve been awake all night crying.

Does anyone have any comfort, advice ir tips? Is there anyone going through the same or has been through the same? Just need a friend.

  • Great job 

    Knew you would take it all in your stride! Make sure meals and all are really nutritious to aid recovery and plenty of rest for rebuild.

    Are u OK moving around? Did wonder how long before one can drive?

    I won't have a recon and if wish to that can come much later! I did read somewhere that there may be risks of reoccurrence with reconstruction but I may be wrong. Who takes this data right?

    I expect it can't be pleasant to lug a drain around, I was told if fluids discharge is less than 5ml then they will take bag off. They expected mine to be taken off next day. We shall see.

    Had a hair cut today and felt so much better for it. At least more presentable on the op table lol rather than the miss platinum before Laughing 

    What did you get in your goodie bag from hospital?

    C x

  • I was told three weeks before driving because you need to be able to do an emergency stop. But you have to check with insurers cos some have specific rules. 

    My drain is 300 mil per 24 hours first couple of days. Apparently when I. go below 50 I can have it removed  

    moving is ok but tiring  walked down garden path to bins and back last night before bed (neighbours couldn’t see my greasy hair in the dark!)  but felt a ten minute knitting session tired me yesterday   

    I find bending down hard and remit allowed to reach up

  • Sorry pushed wrong button meant not allowed to reach up.  

    know what you mean about feeling presentable. I’m  told not to shower for three days so excited about getting some help to wash my hair today.  And I thought I might book a mobile beautician to do eyebrows and maybe pedicure next week.

    I got drain and a cloth bag to support it that goes around your neck with a spare bag that goes on the bottom to catch the fluid  (ask for more spares than that, the district nurse says they don’t carry them so I have to send my sister back to the ward today to collect me some more).  and the little heart shaped pillow that is my new best friend to go under arm - that has been the best thing.  Other than that just paperwork.

    I hope you’re doing OK preparing. It’s definitely  a  lot less painful than I thought and exercises manageable.  


    c

  • You mustn't over do it. Take it easy, it's only whilst you're on the mend. Think the tiredness is because your body is all focused on the area of surgery for rebuild so rest you must! I think you must feel relieved more than anything.

    Thank you for all your assurances. My main concern is how I will cook and feed for myself. I guess I will stock up this weekend and just make sure I got the fridge full as I won't be able to drive. Must try to think positive. Going out for a meal tonight with parents so that will take my mind off things. 

    C x

  • FormerMember
    FormerMember in reply to Claud272

    Claud are you having surgery at llandough?

  • Get some easily prepared/cooked stuff in. I found I had such a sore throat after the op, and didn't feel much like eating. This was presumably caused by the tube they put down. Didn't expect that really. Also ulcers and bit of torn skin in mouth and back of throat. Just for a day or so. I existed on a lot of porridge, first thing, and nice things. I bought a lovely cake before the op as a kind of celebration and we hadn't celebrated my husband's birthday at all as we were so busy with my appts and everything. I couldn't concentrate on anything for some time, think this was effects of anaesthetic more than anything. You're supposed to have lots of protein to heal quicker, but cake does also help the emotional healing. I was told to drink a lot to get the anaesthetic flushed through as fast as possible. Hospital gave me a lot of toast and biscuits, tea, coffee, ton of drinks.

  • I think you’re right. Stuff that’s prepped is good. I’ve found myself feeling faint without carbs so jacket potatoes been good. I love my air fryer cos kids can use it safely to make nice jackets so when my sister goes home then I can always delegate!  

    I found werthers original a real comfort when sore throat after the op in the night.  I can relate to not being able to concentrate Venice. I planned to go back and watch succession from season one but cannot follow it yet. Been watching home improvement and portrait artist of the year programmes and dozing between. 

    the thing I really dislike is the bloody dvt socks which I have to wear till drain comes out !!

    x

  • No ...I am in Bristol The Spire Hospital

    C x

  • Hi. Yup I am the same...no food generally makes me hangry. I love simple steamed food. Also on timer so child friendly. We also have an air fryer. I feel when I am unwell I just want soup from a can! Lol but trying to make an effort to eat healthy

    But it all depends as my dormant hand maybe out of action too

    C x

  • Oh the socks/stocking things ! Horrible. I got very cross with mine as they wers so hot and tight in the night.