Just Diagnosed with DCIS, need mastectomy

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Hi

ive been diagnosed yesterday with DCIS-in situ in the milk duct. Having another biopsy as there is possible invasive cells going into surrounding tissue. Will need a mastectomy within 4 weeks regardless.

As you can imagine I am devastated and my head is all over the place and I’ve been awake all night crying.

Does anyone have any comfort, advice ir tips? Is there anyone going through the same or has been through the same? Just need a friend.

  • Dear Eltwins you will find lots of friends here, you are in the right place for support and advice.  My cancer was differnt to yours but you will soon be hearing from lots of amazing women with the same cancer as you who have been on the same treatment.  We have all been where you are now and know how you feel, you are not alone.  Love from Ann

  • Thank you appreciate you replying. It’s so scary and will the tears stop? Grimacing

  • FormerMember
    FormerMember

    Hi Eltwins.

    Sorry to hear your news. I had DCIS 10 years ago, (found by chance after routine breast surgery - no lump) & I opted for just radiotherapy & no further surgery. I’ve just been diagnosed with invasive cancer in the same breast and now wishing I opted for mastectomy in the first place. Because I can’t have radio again on that side I have to have one this time anyway.

    Im on day 9 after diagnosis. The shock has worn off and I’m just keen to get started in fighting this thing now. I’m getting chemo before my surgery.

    Sending hugs. Rest up, you must be exhausted after last night.

    HM

  • FormerMember
    FormerMember

    Hi Eltwins 

    I'm sorry you  are here and you had a soul destroying day yesterday. This is truly the very hard part I expect you have had a terrible night. So let's move forward ,you are going to have treatment shortly so this will be so good because when surgery over , the cancer,  will be where it belongs out of you! I have had a bilateral mastectomy and I can say the trauma and fear was for me the worst. The actual surgery was a breeze   It's recognised as not a particular painful operation and physical recovery is quick. Today is the start of you coming to terms with this and soon you will feel better and up for the fight .  Your breast is not worth your life ,  move forward try not to  stress treatment is very good today and everyone on here will support you . 

    Jayne X 

    • Hi HM, sorry to hear you are going through the cancer thing again. That must be tough. I know I’ve made the right decision, so guess that is a positive step forward.
    • take care x
  • Hi Jayne, thanks for your reply. I am having reconstruction at the same time, did you? They will hopefully be using my belly fat which is a plus point! Grimacing
    Its just getting my head around it and being on this cancer rollercoaster now, probably forever.

    xx

  • FormerMember
    FormerMember in reply to Eltwins

    Hi Eltwins 

    That's great 

    You are having a reconstruction at the same time , they not doing it by us at the moment just removing the cancer and reconstruction at a later date.  but I'm not planning to have reconstruction myself . I'm 64 I can't be bothered. But I totally understand people who do . Hope you are feeling better , this nightmare will be over soon x 

    Jayne 

  • It took me about 2 weeks to stop crying on everyone. I woke up around 2am one morning with the thought that well it’s already there, I’ve just got to get on and do the tests, have the surgery and deal with it. Which was exactly what the consultant and breast nurses had said to me. But until you accept in your head it whirls around with all the what if’s etc. 

  • FormerMember
    FormerMember in reply to Angua1

    I so agree with you Augua1 I'm going for first chemotherapy today and I will just cry as I walk into the ward but that's ok I'm just processing what's happening to me. We just accept and do it don't we? You are also like me with the what it's etc, but I have turned it around in my head . What if we didn't have an NHS? What if we didn't have any treatments, what if this wasn't a breast cancer but a brain tumor?  Maybe I have been lucky ! 

    Take care 

    Jayne X 

  • It’s so weird when it does click in your head. It shocked me how many friends had been through it and I didn’t know. I was convinced it must have spread everywhere, even though I’d no symptoms.