Well I didn’t see this coming…..newly diagnos

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Hello lovely people, I had a mammogram, ultrasound, biopsies and “the chat” today, told so sorry but it is cancer and now we need to wait for your results. I actually snorted whilst crying, which is pretty mortifying in itself! Was hoping not to be that person awake in the wee small hours Googling my life away but tadaaa, here I am See no evil I feel like I’m watching somebody else’s life, you hear about cancer every day and always think it’s awful but now to be here….I’m just shell shocked. Is this wait for the official diagnosis one ofhe hardest parts because it feels pretty bloody awful right now and I’ve already convinced myself of a million outcomes tonight. Think I should limit my reading to official sites and soak up the good advice from those with experience. I’m 42 with 2 fab small boys, they will keep me busy but also make me cry if they do anything remotely cute, they may get away with far more than normal a while JoyJoy

  • Welcome! Bloody rubbish isn’t it? It’s incredibly hard waiting for those analytical results so you know what you’re dealing with, there are so many variations of BC out there so yes try and limit your Googling for now hard as it is!! It oddly does get a bit easier when you have your full diagnosis as you can plan, especially when you’ve got your kids to consider. I hope you’ve got lots of good local support, this site is a real help to me so I hope you have the same experience, good luck xx let us know how you get on x

  • FormerMember
    FormerMember

    Hello WW25

    I was in exactly the same position as you on Wednesday - it does get better. I posted literally every time I had a wobble and the responses from the ladies here got me through those initial dark times. 

    I’m waiting for full diagnosis but know a little bit - my circumstances may not be the same as others here but the emotions I felt isn’t uncommon. Best advice from my BCN so far was to write down all the questions whirring in your head and get the answers noted against them when I next see my consultant (am I going to die, has it spread everywhere, will I lose my hair, how long will I live, what if I’m triple negative etc.). I’ve had some proper awful thoughts and felt so anxious at times but writing it down just gets it out of my head - there’s not much else I can do, it’s written down so need to wait for my appointment now. 

    The ladies here have been brilliant and helped me to prepare mentally and physically. I remind myself I’m taking a little detour in life, it’s just a blip. I know this is very treatable - and waiting for the treatment plan is the worst.

    I’ve spent time keeping myself busy, doing walks and signing up to charity walks in October. I’ve given members of my family and my close friend roles (so they feel they’re helping). I’ve got a chief comedian who has to make me laugh throughout this, hair and make up artist who will help me pick out the latest wig trends and welfare officer who has to make sure my son is not bottling his emotions up (I’ve yet to tell him as I want to have the answers to the expected questions ready before I tell him). 

    i was diagnosed on Wednesday, it’s Saturday and I feel a lot better  about it. It’s a rollercoaster of emotions for sure but I just go back to my notebook and read my first entry, “I’ve got this”. I can’t deal with the C word so have called it a gremlin. The thought of chemo terrified me so I’ve watched Victoria Derbyshire diaries (as recommended through here), I can see it’s going to be doable. I’ve started buying bits and pieces in preparation, booked my hair cut. Trying to get some control of the situation.

    Allow yourself time to process what’s happening, please remember you’re not alone. I’m going through it too, lots of ladies here have gone through it too. I’ve felt periods of sadness, anger, determination, disbelief all come and go - but it’s settling.  This group has been of huge comfort to me, I’m sure it will be to you too. Keep talking and sharing here, you’ll soon see what you feel is not unique. 

    Sending you strength, love and positive vibes x

  • .....that is such an excellent reply that there is nothing left for me to add.....except to wish you both well. There is good news in this awfulness. Your cancer has been found and will now be treated. The success rate for recovery from BC is excellent. Treatment won't always be pleasant or easy but it is often very successful. Don't google as you have discovered....ask as many questions as you need on this site. The Awake thread on chat is a good place to express your feelings or find advice.

    My own cancer was found in 2015. I had a lumpectomy,  chemo and radiotherapy but every mammogram since has been clear of cancer. 

    To quote ' you've  got this!'

    Take care both of you. The waiting will seem an eternity but it all passes and you can look back like me.

    Love Karen

    1. I
  • Honestly, the waiting at first is the absolute worst. Once you have a plan it will get better, well it did for me.  Please stop googling…….for your own sanity and it will always be wrong. There'll be lots of advice and support on here when you need it and the blogs can be useful to. I documented my journey on there snd it's helped me to write it down, if it helps, check it out. good luck with the results x

    https://community.macmillan.org.uk/cancer-blogs/b/one-life-live-it

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  • Hope I'm replying to all. Not quite down with the forum know how just yet Grinning

    Thank you all so much for your replies and incredible words of encouragement and positivity. It's amazing how much better you have made me feel already. I love the idea of assigning tasks, chief comedian is brilliant!! 

    I'm stopping with the random Google searches, that provided zero comfort. Why do we insist on self diagnosing JoyJoy

    Clearly need to keep busy, crack on and roll with the punches. No Gremlins taking me down.

    Love to you all and thanks again.

    Xxx

  • FormerMember
    FormerMember in reply to WW25

    I’m glad you’re feeling better, give yourself sometime to process everything going on. If you feel like you’re on a rollercoaster of emotions, just hold tight and you’ll get through it. 

    And yes, please ditch Dr Google! Enjoy your Saturday xx

  • Hello WW25, it sounds like we´ve had similar experiences - I have been recently diagnosed following mammogram, ultrasound and biopsy too -  and we are in similar situations. I´m 46 with a 7 yr old boy and I´m trying to keep upbeat and strong for him but it is obviously hard at times. I´m due to have my CAT/MRI scan and blood analysis soon too and am convinced the cancer will have spread everywhere after reading on Google and feeling every ache and pain as something sinister! We should both stop with the Googlescares! 

    Sending you love to you. I´m off to check out the Victoria Derbyshire diaries now as I´ve not heard of them! xx

  • Hi Doria, lovely to hear from you. So sorry to have to share this journey with you, but isn't it just mind blowing how many incredible women are going through this and have before. I have my results appointment on Monday but I don't know when my MRI will be, getting a bit worried that I should have heard about that already! In truth I worry about everything so I don't know why the MRI is different lol. This has felt like the longest week of my life and each night I've felt my boob convinced the lump has dramatically grown. I think the only drama is in my head but wow, the gloom demons are having a party in there right now!! Hang on in there and best of luck for the next few weeks. Here to talk anytime.

    Lots of love xxx

  • Hi WW25, how are you getting on? xx