Hello I'm newly diagnosed

FormerMember
FormerMember
  • 8 replies
  • 484 subscribers
  • 645 views

3.00am and I  can't sleep. Diagnosed 12hrs ago with DCIS. Lucky it's early stage. But I'm sole carer for 90yr old LO with vascular dementia. How am I going to cope with treatment and recovery?

  • Hi Genia, sorry you find yourself here. It’s very frightening when you get this kind of diagnosis, especially in the early diagnosis days when your treatment plan may not be clear, it’s easy to become overwhelmed. In honesty, how you’ll be able to cope will depend very much on what treatment you are offered. I had DCIS in 2013 when my daughter was 4. I had to have a lumpectomy and radiotherapy. If you’re treatment plant is the same then I would suggest you’re going to need to get support for initially, quite a few diagnostic scans/tests, for the lumpectomy support for the week after particularly, radiotherapy a couple more appointments prior to treatment starting and then I had 3 weeks of daily radiotherapy (not at weekends), each appointment takes circa half hour. Do you know your treatment plan as yet or is it too early days?

    I hope that helps and I hope you have other family members that can step up for you? Tbh I hope you already have that, I have some experience of friends coping with caring for a loved one with dementia and it’s heartbreakingly hard. I’m sorry you have so much on your plate. All the best xx

  • Hi, so sorry you are going through this, I’ve just come out the other side of chemo and surgery and managed quite well, but as have learnt that we are all very different when it comes to treatment and reaction. I hope you get a clear plan soon and I also hope you have good support to help with your caring responsibilities x

    Community Champion badge

  • FormerMember
    FormerMember in reply to Anna12345
    1. Thank you so much for your reply. I'll know more after 23rd August when I've seen the consultant again.   I do have friends and family who will help. But I have to say I'm not good at asking for help! That will have to change.
  • FormerMember
    FormerMember in reply to Anna12345

    Thank you for your very informative reply, I can already see this site is going to be reassuring and comforting. Did you have to stop driving at all?

  • FormerMember
    FormerMember in reply to Irishgirl16

    It's hubby I am more worried about.  He gets anxious if I'm not with him. 

  • Other than for maybe a week after my operation no, I drove myself to all my radiotherapy appointments, didn’t have the most supportive husband at the time! But no I was able to do most things quite quickly x

  • Yes me too. I told my friends to be precise, ’I’ll do anything to help’ is useless to me but I’m going to Tesco do you need anything is helpful or I’m passing do you fancy a cuppa, etc. 

  • FormerMember
    FormerMember in reply to Anna12345

    Sorry you didn't have good support from your husband, and thank you for your comments re driving, most useful and reassuring.