3.00am and I can't sleep. Diagnosed 12hrs ago with DCIS. Lucky it's early stage. But I'm sole carer for 90yr old LO with vascular dementia. How am I going to cope with treatment and recovery?
Hi Genia, sorry you find yourself here. It’s very frightening when you get this kind of diagnosis, especially in the early diagnosis days when your treatment plan may not be clear, it’s easy to become overwhelmed. In honesty, how you’ll be able to cope will depend very much on what treatment you are offered. I had DCIS in 2013 when my daughter was 4. I had to have a lumpectomy and radiotherapy. If you’re treatment plant is the same then I would suggest you’re going to need to get support for initially, quite a few diagnostic scans/tests, for the lumpectomy support for the week after particularly, radiotherapy a couple more appointments prior to treatment starting and then I had 3 weeks of daily radiotherapy (not at weekends), each appointment takes circa half hour. Do you know your treatment plan as yet or is it too early days?
I hope that helps and I hope you have other family members that can step up for you? Tbh I hope you already have that, I have some experience of friends coping with caring for a loved one with dementia and it’s heartbreakingly hard. I’m sorry you have so much on your plate. All the best xx
Hi, so sorry you are going through this, I’ve just come out the other side of chemo and surgery and managed quite well, but as have learnt that we are all very different when it comes to treatment and reaction. I hope you get a clear plan soon and I also hope you have good support to help with your caring responsibilities x
It's hubby I am more worried about. He gets anxious if I'm not with him.
Other than for maybe a week after my operation no, I drove myself to all my radiotherapy appointments, didn’t have the most supportive husband at the time! But no I was able to do most things quite quickly x
Yes me too. I told my friends to be precise, ’I’ll do anything to help’ is useless to me but I’m going to Tesco do you need anything is helpful or I’m passing do you fancy a cuppa, etc.
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