Hi there. Just reaching out for some advice and comfort I guess! I had a lumpectomy and lymph node removed at Xmas, course of radiotherapy. The day before my 6 month checkup last week I found a little lump in the same place and after the usual tests I have been told I have Pre invasive cancer cells again. The only way to treat this is a mastectomy. I am trying to get my head around this. I can’t have a basic reconstruction as I am not long finished radiotherapy and the Diep reconstruction sounds really a lot of surgery which I’m not sure I’m up too. I’m thinking at this stage get the mastectomy done and then maybe consider a reconstruction at a later date if I find emotionally I’m just not coping with the mastectomy and how I look! I have spoken to a couple of people who have given me very different experiences of a Diep surgery and then living with a prosthesis. I’m seeing my surgeon Monday night to discuss surgery. Mentally I’m all over the place dealing with this news. I know I have to do the surgery but just very anxious about it. Doing a lot of crying!
Gosh iM so glad to hear your thoughts on having no boob! I just can’t imagine how it’s going to feel! I feel so anxious about op but I know I have to do it! Yeah I think I need to come to terms with initial surgery and then see if I want to have reconstruction. My head can’t deal with anything else but the next step. Hope you are feeling comfortable tonight. It’s so reassuring to hear how you are doing. Thankyou xx
Jane
Take care Whitestar, I just woke up had about 4 hours sleep I tend to do this now and like you not getting a lot of sleep . This is so difficult for you I'm glad the chat helps . Hope you have your surgery soon and can then start back on the road to recovery. It's good news that they caught the cancer in its pre stage. I don't know about you but I do feel that the emotional effects of all this are enormous. best wishes , try and get some sleep X Jayne
It does show the importance of close monitoring. I wish I had had annual mammograms, but they weren't offered.
I know, although this didn’t show up in a mammogram which is worrying! Just the ultrasound detected it. Thankfully I was on my guard and felt something again. But yes close monitoring would be good from now on in x
Jane
Emotional effects are just overwhelming! I guess lack of sleep doesn’t help either! I haven’t wanted to see any of my friends, have kind of gone into lockdown, self protection, get my head around things, so this is a life saver! Thankyou … today I will aim to be positive and thankful we caught this early again! Xx
Jane
Jane you sound upbeat this morning I'm so pleased ,I have done the same as you, just told a few friends and the rest to my friends don't need to know. I have cut contact with them for the time being .I need support from the right people right now . Yes I'm in lockdown too until my head is right I do think that this will make me a stronger person . I have found that I am enjoying sitting in my garden when it's raining, it's the most calming thing I have done .
I suppose so many people go through this each year and now it's our time . But as my stepmum used to say to me " don't worry nothing stays the same the scene will soon change " therefore , soon we will be on the up, and rock and rolling all the way to Christmas !
I’m not sure some of my friends understand but I can’t deal with their questions so I’m looking after myself! My husband and I doing a lot of walking and he’s just letting me cry and talk when I want to! I will reach out to them when I’m ready! You enjoy your day and hopefully get sitting in the garden! Maybe not in the rain! Thankyou for listening and giving me advice…..Christmas will be here before we know it! Xx
Jane
Jane, I'm so grateful you've brought up the points that you have on this forum. I've just been in touch with my Oncology Nurse to bring up what happens if - eg as in your case, mammogram not showing a problem after radiotherapy. I am pretty sure my cancer was developing whilst mammogram showing no problem in past years, or it wouldn't have been so big and widespread. You have actually identified and publicised what can happen, so you have my huge appreciation for having the courage to bring this all up and out into the open, as upsetting as it must surely be for you. There could be many ladies in a similar position (me for instance !)
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