hello

Your not alone. I had my surgery on 7 July and am still waiting on results from that (apparently there are lab delays at the moment).

im fully recovered from the surgery but feel like I’m in no mans land and don’t yet know what’s next. X

The waiting is awful and does make you feel isolated because your worries continue circulating in your head but you don’t ‘feel’ you can keep talking about it for some reason. I said on another thread, my sister had hodgkins years ago and the most mental anguish we both experienced was after the consultation where they said, that’s it, your done for now, no sign of disease, come back in 6 months. The mental walls crumbled. You run so much on adrenaline and appointments, etc when you’re in the eye of the storm that when you can finally breathe you start to process all that anxiety and fear you’ve suppressed. Cancer doesn’t end with the end of treatment for many people, there’s always a safe space here x

Omg, cant believe your still waiting for your results.. i got mine back last week.. But im not fully recovered from the surgery.. as ive developed cording.. Hope you get your results soon, and that part is done with.. hugs x

Thanks Pepsiepixie, Today is my fingers crossed for a phone call day, Tuesday is the multi disciplinary meeting day, and so if they are not back by today it will be another week.  I just want to know the situation and plan.

How we’re your results? Margins clear? Do you need any more surgery? Hope all is favourable xx

Everything crossed you get your results back today…. I was quite fortunate in that respect, has surgery 4 weeks ago, results within 10 days… all clear…..but know maybe chemo so another wait.

Good luck xx

Thank you, and sadly and frustratingly no phone call, 4 weeks post surgery and no results, they must have a big problem here in Gloucestershire in the labs, or wherever they are sent. I could scream and cry!

Great that your are all clear, that’s why I want mine, I hope that’s me also, or to know what’s ahead at least. Fingers crossed you don’t need chemo.

And so another week of waiting for me. I do understand that this waiting thing is something to get used to as the tests etc will never end, and so this is the new life! 

Today and yesterday I’ve slipped mentally with it all again. I just struggle with not being in control and the unknown of the future. 
Because I’m now physically fit and well after surgery I feel alone with my fears.

Xx

I am cancer free, the nodes that they removed were clear... I have to have radiotherapy, going on Thursday to see what they are going to do, i am now taking 5 years of the hormone tablets xx

Hi SKi4JEN, wonder if your results come from Birmingham, some one on another thread was saying they had a long wait for results from there … I hope you get your results very soon, it makes us so anxious waiting, we just want to move on x

That’s the horrible thing with waiting for results no matter how long….you feel you have no control and total uncertainty about what’s coming next. I’m sorry to hear you feel alone with your fears, I think even if you are surrounded by the most caring people no one can fully understand what’s going on in your head and it can feel a very lonely place at times!

Sending good wishes xx

is it worth mentioning the delay to PALS team at hospital to find out reason for delay? Good to highlight the stress levels etc.

The wait can be unbearable and I got myself very worked up about my results (all cancer removed, margins clear, sentinel nodes clear). I even find waiting for appointments hard. Still got another week for radiotherapy meeting with CT scan but don't have dates for sessions, so feel I can't plan much at all. I think it does depend where you are and delays vary - it just doesn't make it any easier.

keep going.. one day at a time x