I’m looking for some feedback or advice from people who’ve been in my situation.
I had a 14mm tumour removed from my right breast at the end of March 2021 along with 4 lymph nodes. This was stage 1 and grade 3 triple negative, clear margins were achieved and the 4 lymph nodes were clear.
what worries me is that I’ve not been offered any scans and when I mentioned them was told I don’t need them as there was no sign of spread?
I’m currently in the middle of 8 rounds of chemo which will be followed by radiotherapy and then a “boost” of radiotherapy as I’m considered to be young at 52.
i also have the form to have a blood test done so genetic checks can be made for the BRCA and other genes by great ormond streeet.
my oncologist told me that as it was TNBC there’s a higher chance of it recurring within the first 5 years either in the breast or elsewhere in the body so why don’t they suggest scans to make sure there’s nothing else there now?
I’m confused and very anxious that something might be missed as the tumour was only picked up during my first mammogram as it was too small to be felt and I had no other breast cancer symptoms.
I live in Essex and would be interested to know if this is a standard approach or if different NHS areas offer different options? Thanks
Hi, this is standard practice. Clear scans don’t mean there is no cancer lurking, and scans can also show up other non-cancer things which will never cause any problems but will need investigating. Unfortunately all of these tests cost money and make the waiting lists for those who have a higher chance longer, which may cause them to miss out on vital windows of treatment. You will get yearly mammograms, which many people find reassuring if they have had a lumpectomy.
I think everyone is surprised that there is so little follow up, so it is really important to be vigilant.
You can of course look at private screening, there is an nhs leaflet here - my lovely friend had breast cancer and paid for private scans yearly, but it didn’t end up picking up her secondary cancer, which had obviously been there all the time but lurking and avoiding detection - she was diagnosed after having back pain and going to her GP and being referred back to her hospital.
Good luck with your recovery, have you read the article by Peter Harvey on life after cancer? https://www.google.co.uk/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwiWwvy8r43yAhXGh1wKHV2eAXEQFjAAegQIBRAD&url=https%3A%2F%2Fwww.workingwithcancer.co.uk%2Fwp-content%2Fuploads%2F2013%2F03%2FAfter-the-treatment-finishes-then-what.pdf&usg=AOvVaw2Zkfakgg8v4EVaxg1z3eUM
This might help you.
Jo x
Hi Monalisa1869. It occurred to me too that there is a lack of scanning. However, you will get a CT scan when they do the radiotherapy. I felt I had to beg for ultrasound, because the Breast Cancer Nurses can't tell just by looking at your breasts what's going on. They couldn't even tell I had a haematoma and disregarded the fainting, despite me telling them. Frustrating. I am not sure what the CT scan shows, but its obviously important to your radiotherapy treatment. The info below helps:
How is CT used in cancer?
CT is used in cancer in many different ways:
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