Lobular breast cancer and lymph nodes 37 young mum and teacher terrified

Hello,

It's late so you may not get many responses at this time of night but just wanted to reach out and say you are not alone.  There are lots of ladies & a few men who have walked in your shoes and will be along soon to support you.  The speed of tests, surgery is totally normal so don't read anything in to it.  There is a group for under 50s - not sure how active it is as I was 51 when diagnosed (57 now).  

Under 50s

And also there are threads for each month's Chemo , radio therapy under this link 

Diagnosis & treatment

Also all members should complete their profile so if you click on their name you can see a bit about them.

I know night time is the worse when all the little demons come to stop you sleeping but once you start your treatment you will feel a bit calmer.

Hi, of course you're scared, so was I 5 month ago when I was diagnosed.  But you've come to the right place for support.  I had a 55mm lump, have had chemo and will have a lumpectomy in 10 days time.  Honestly, nowhere near as difficult to manage as I imagined.   I don't have young kids, but I have worked all the way through chemo with literally a few hours off here and there.   

Check out my blog, there are a lot of posts, sorry, but it documents my story so far and it might help.  And shout on here with any questions, there's a huge amount of support.  Take care x

community.macmillan.org.uk/.../one-life-live-it

Welcome to forum, some of us insomniacs are still here, just wanted to reach out to you that you aren’t alone. This stage when you don’t know exactly what you’re dealing with is the hardest time, your mind runs away with you. I also have lymph node involvement that they said was significant, but my bone, mri and ct were clear, I felt that I was being primed for worse news but all that additional worry was for nothing. We all know it’s far far easier said than done but try not to deal with what ifs. Just what you know now. Keep sharing all your fears and  someone on here will always be here to help you, hope you get some sleep xx

• I've got lobular and axilla breast cancer. One tumour was so close on chest wall surgeon wouldn't operate. I've been on Palbociclib and Letrozole since February.  I had a CT scan last week and saw Onlogist Tuesday. Lymph node one has vanished and 6cm breast one is small. I'm now waiting to see surgeon. I'll probably have a mastectomy then radiotherapy then Palbociclib for 12 months afterwards.Oncologist looked me in the eyes and she said " it's curable". Have faith sweetie

Hi NPJ2021

I'm sorry you are going through this, I can relate to the terror you are feeling as I'm going through it to. The most moving  thing I read on here last week was to look on chemo as a friend as it is saving countless lives every day. I'm having a double mastectomy on Monday just had my Covid test praying its negative . I have had some dreadful days and nights , chatted to a friend last week about her cancer with lymph nodes affected and she did very well with surgery, radiotherapy and chemotherapy . it has kept her healthy and cancer free since 2003 ( she is still healthy). This is a very challenging time for all of us on this platform  I don't know how I will go forward after this, but I will treatments are good and I will do what I need to do  .

I'm a teacher like you and I'm planning a year off ! So surgery for both of us next week and a treatment journey after that  which should be over by Christmas ya . Best wishes x 

Hi, I just wanted to say hello as I am also a mum to 2 very young children, my oldest is almost 3 and my youngest is 4 months old (she was 5 weeks when I was diagnosed). I’m having chemo at the moment. I fully understand how hard it is to cope mentally as I’m sure like me all of your thoughts come back to your children. I’m not going to lie it will be a difficult road to recovery and I hope you have lots of support around you especially re childcare.

Your children will be a great help getting you through this, they are an excellent distraction and they make it seem like you are living a normal life, instead of lying in bed focussing on thoughts of cancer (although you will have these days). 
I really hope that things go well for you, like others have said this is the one of the hardest parts to get through waiting for tests and for your treatment to start. 
good luck with everything xx

Hi this is great that you are reaching out and I am sure myself and others will support you as much as we can and for as long as you need us to. So, here is my experience ..... no lump, no pain, nothing- did not have a clue and regularly attended for my mammograms, last one 2019. 5  weeks ago getting undressed to get in bath noticed indentation under my right breast, thought nothing of it, trick of the light and all that. Following day noticed again but other than concave .... nothing. However, I worked in the NHS for 20 years so mentioned it in passing and referral was made to local hospital. Had the usual mammogram x 2, ultrasound x 1, biopsy x 3, diagnosis confirmed lobular Ca, returned following week on the Thursday, told to be in at 0730 on the Monday morning, returning for pre-op on the Friday and a lovely weekend ordering post surgery bras! 5 days from seeing surgeon to being in theatre!!!! This all happened only a month ago!! More than happy to buddy up and share more if you would like me to. It’s ok to feel scared, but you will find you are stronger than you realise. Just shout out if you want to know more of my story, I am going through it right here right now. Be gentle with yourself xxx

Hi , I’ve just been diagnosed with lobular breast cancer, I’m waiting for an MRI scan . I’m 53 it’s very scary . I don’t have small children, mine are grown , so I can imagine how awful the worry is for you .

I don’t really know much about lobular cancer and my partner has made me promise not to keep googling as I am making myself ill and frightened. 

Hi 282

Try and stay off Google lots of miss information .its good you have a scan due  so you will soon have a treatment plan . I know its all scary and I have struggled these last two months.  But the   NHS have a  good site you may find some information on there you can trust . I have found it useful. if your diagnosis is fairly recent it will take you some time to come to terms with it. Lots of emotions are swilling around in my head all of the time. Try and take one day at a time and remember even if you need surgery, chemo, radiotherapy you should be in a better position by Christmas and hopefully almost back to normal. Like you my children are grown, and I have grandchildren who when I'm with them they seem to help me to forget about it all for a while. best wishes x Jayne 

Hi. I too had lobular cancer. Diagnosed in dec 2020. Started on docetaxol carboplatin trastuzemab and pertuzemab for 6 sessions. After the 2 round the oncologist could not feel anything and breast looked different. Chemo was very hard going and wanted to give up. The intention was to shrink the tumour then have mastectomy. It had also gone to lymph. Nodes. By the time the mastectomy happenef on 29th June, nothing could be seen on ultrasound or felt. 

After my mastectomy going for the results was so scary. I had convinced myself they were going to be bad, so just wanted to go by myself. I was then told that chemo had blitzed everything and had had complete pathological result. I was cancer free. There is definitely hope for everything. Don't give up.