Any advice wud be so grateful if anyone has same diagnosed etc if click on my profile to see what I have got done so far to this date

Hi Neevy

Sorry to hear that you didn’t get good news today and that you have two different types of breast cancer. It’s hardly surprising that your head is all over the place.  I suggest that you ring the Macmillan helpline and maybe they can help you decide what option to go for. I wish I could be of more help as I wasn’t faced with the same dilemma. At the end of the day you need to do whatever is best fo make sure that you recover from this.

Wishing you the best of luck with whatever decision you make.

Best wishes

Daisy53 x

Thanks so much yes tomorrow I have made list for them and my nurse thank you so much xx 

Hi Neevy, so sorry you didn't get good news today, its hardly surprising your head is all over the place.  I agree with daisy, talk it through.  Did they they give you a proper sizing pls neevy xxx

Hi Neevy35

I had a different but similar experience to you, if you click on my profile you will see - I had three failed lumpectomies to get clear margins , then had chemo , then a mastectomy with an implant , changed at a later date to a DIEP flap. To me this was the best thing as it gave me a breast which in a swimsuit , clothes  etc looked no different, but also gave me time to think after the whirlwind of everything else. For you, if you need your other breast removing , you would then have the option of a Diep flap for both breasts at the same time, this is a fantastic operation , but long stay in hospital and recovery , maybe not what you need right now, particularly if you are having chemo too in the mix. Ask your surgeon if this plan would work for you you ?

Once you have your head around what you plan to do you will be calmer , I have said before I felt like I was in my own personal game of snakes and ladders , so many times treatment plans change , but the most important  is that the changed  plan works for you, and your team will work out what’s best in terms of chemo , radiotherapy etc , it’s you who will have to make the surgery decisions.

Good luck

Jo x

Thank you jo, really has helped me xx

Hi Neevy,

Sorry to hear you’ve had this very disappointing news. I agree that your BC team or a Macmillan nurse would be best placed to give this specialised individual advice. Would talking it through with someone make you feel better?

I’ve just completed 6 rounds of chemo prior to surgery and, although I’m awaiting some imaging, I’ve been told the tumour has shrunk. I’m not going to say chemo is easy but it is doable. Can you get some help with your child just to make things easier?

My genetic testing results came back within the teams 8 to 12 weeks guidelines. Thankfully negative for a genetic component.

You’ve had a lot to take on board, especially when unexpected, so I’m hoping you can get some good advice soon.

Bluebell xx

Hi yes grade 2 the first they took away was 17mm the second 9mm that they have removed during my first surgery xx

Hi neevy, talk to your bcn and macmillan nurse, I did not realise this was your second surgery sorry, was that because of no clear margins, sending hugs xx

Thank you so much yes I am thinking if they go back in again and still no clear margins that wud be waste of surgery again and plus now lymph nodes are involved also . I really am thinking breast removed is the better outcome x

Ah thank you wish I had of maybe been offended chemo first before I had the first operation but least now my both cancer lumps are gone it’s just the lymph nodes and no clear margins. Yes I wud have lots of family help etc I am thinking of just having boob removed even now before I wait for genetic testing results. Xx