Triple negative

Hi. I was diagnosed with triple negative breast cancer in November 2020. I totally understand what you are going through. If you need a chat or advice I am here for you.

Hi Daisyflower1

I was diagnosed with Triple negative breast cancer last September. I can understand why you are scared but triple negative is treatable specially if it’s caught early enough. I know a number of people with the same diagnosis and they have come out of the other side of it. 

I’ve had chemo and it greatly reduced the tumour in my breast and completely got rid of the tumour under my arm. I had surgery about 5 weeks after I finished chemo. I did have some cancer left in one of my lymph nodes that my surgeon took so I had a CT Scan and a bone scan to make sure it hadn’t spread. About a week later I got the good news that it hadn’t spread so there is hope.

Like Mummyto2boys I am here for you if you have any questions or need advice, and you will find plenty of support on this forum.

Wishing you all the best with your MRI Scan and with whatever treatments your consultant recommends.

Best wishes 

Daisy

Hi, it's just scary trying to get your head around it... I'm still working at the moment-even though I'm in a daze 

Thank you for your reply. Its good to know you are on the right road to recovery. Just I haven't heard many good stories with this particular cancer. So was starting to panic. 

Hi there,

I am just new to this community and I have been diagnosed with TNBC. I am due to get my third round of EC on Thursday and then moving onto Paxil/taxol. Myself and my partner were trying for a baby when we found out I had cancer. 
we didn’t have time to do fertility so I am still trying to deal with that as well as get my head around the breast cancer. 

I have a lump in my breast and also one under my arm. Due to go for a scan after my 5th round of chemo to see how things are. At the moment we are unsure about what kind of surgery I may need and also waiting on the results for the BRCA gene. 

Hi SuperNoodles

Welcome to the community and sorry to hear that you have been diagnosed with triple negative breast cancer. I too was diagnosed with TNBC last September and I had eight rounds of chemo. I had a lump in my breast as well as one under my arm.  The chemo greatly reduced the one in my breast and got rid of the one under my arm. Hopefully chemo will do the same for you.

Wishing you the best of luck as you go through your treatments and with your scan when you have it.

Best wishesf

Daisy

Thank you so much replying. It is just so much to try and get your head around. 

I am just about to have round three of chemo and I can tell that the lump is shrinking already as I find it difficult to find now, where as before I knew exactly where to was.  Trying to remain positive. 

Hello, I’m new to this forum and like you was diagnosed with TNBC in January. Even after diagnosis which was a week I still couldn’t get my head around having cancer much less triple negative. My surgeon referred me to have the Gene Test, the initial appointment came along quickly and it was then I found out how rare this type of cancer is.  But still was full of positivity vibes.  Then I was referred to oncology.  They worked at snail pace and stopped the start of my treatment twice and after 5 weeks I was told it was in my Liver. I was devastated.  I started my treatment after 8 weeks of me knowing I had breast cancer.  Even then the day of treatment, oncology wanted to remove a nymph node in the other breast, even though I was told there was no cancer detected in that breast.  I was devastated but decide NO enough was enough, I spoke to a close family member who is a Doctor and they said what do you want to do? I said I want to start my treatment NOW, they said then tell them.  So I’m currently having chemotherapy and immunotherapy treatment.  I’m on my 4th cycle and had a CT Scan before the end of my last cycle.  Result - tumours in breast are half the size and no trace in the Liver.  Result!! I had the Gene Test which came back negative. My main side effect is Neuropathy in the feet.  Only started end of last cycle and looking for right treatment to help symptoms. I’m positive that I’ve got this, be strong.  My specialist nurse isn’t supportive at all, I thought it was me, but found out others feel the same way.  Tried reaching out to Macmillan but they didn’t call back at a scheduled appointment so I have reset myself to doing this journey with no medical support. My family are my rock, especially my daughter, it’s always been the two of us and this has certainly tighten our relationship.  I think it maybe my hospital as other trust lean on the expertise of the Macmillan nurses. It will be good for me to see how other hospitals works and having the support of this forum is fantastic. 

Hi , I'm Sorry to hear of your diagnosis.  I was diagnosed with TNBC in June last year, i have my 1 year follow up tomorrow which is why i find myself here on the forum.  So this point you are at now is the worst, once you have a plan in place you will feel much better.  Chemo isn't fun but it is doable and you can do this.  I had chemo - surgery- radio  finished my treatment in Feb and had a complete response to chemo, no cancer cells found during my surgery.  This type of breast cancer is very responsive to chemo, you've got this! x  

Also i have a friend who was treated to TN 18 years ago and she's completely well!!

If you ever want to ask me anything then please send me a message. 

Take care x

Birdy71 reading your post was so uplifting.  Hope tomorrow goes well…it will.  Full of inspiration.

take care, best wishes

Cydney97