Breast cancer

FormerMember
FormerMember
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Hi there, I have breast cancer and had 18 weeks of paclitaxel and herceptin. I then had a lumpectomy and incision under my armpit to check the lymph nodes. I now await tadiotherspy and have been told o need another 14 cycles of TFMI which is herceptin and another drug which takes me another year near enough of treatment. My hair has been recovering well and now I will lose it again and all the same chemo after affects could apply. I was told that the cancer was all cut out with a good margin  around it and nothing in lymph nodes. I was shocked and quite honestly traumatised to hear I have to have this treatment after thinking I was nearly through this. Has anyone else had this experience and how was the treatment compared to the paclitaxel. I have asked my boss if I can work from home and he is not keen cos wants me to be on the office to answer phones. Consultant says I should not go to work because of risk of infection etc so I don't know what to do. So far they have been great and paid me full pay but i i7think the good will is running out. Any body have the same dilemma and how did it go?

  • Hi

    I can't help with your questions but I noticed that your post hadn't had any replies yet. This is probably because this is such an active group it has slipped off the first page before someone with the right experience has seen it. By replying to you it will 'bump' it back to the top of the discussion list.

    It would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    Thanks for that, I thought nobody had seen it or was interested. Feeling very emotional and finding it hard to follow the procedures. I have updated profile so see what happens next 

  • Hi 

    Is the treatment you are having TDM-1 ? Your post lists TFMI which I can’t find as a treatment? If it is TDM-1, this is a really new treatment which was only authorised in April this year- for primary breast cancer- it is also called Kadcyla, if you search at the top of the site you should find people who are having this treatment, I know I have commented on at least one post about it? They might be able to advise on how they are feeling etc?

    Jo x

  • FormerMember
    FormerMember in reply to jowoomot

    Yes its TDM1, that's my pants typing. Thank you very much, it gives me a bit more confidence. I'll look it up. Thank you so much 

  • Hi Wispajo 

    just answered your other post, but to put your mind at rest hair loss is a really uncommon side effect you will more  than likely keep your hair mine is still growing with this treatment.

    As I replied on your other post if you have any questions feel free to ask.

    carolyn x

  • FormerMember
    FormerMember in reply to ral

    Thank you so much, you have really helped me with this information, I was getting myself in a right state about it all but sounds like it won't be as bad as I thought. I know we are all different but I think I was quite lucky with previous treatment. I was very sick etc at the start but once it settled down my side effects weren't too bad at all. Fingers crossed this will be better. Thank you Carolyn x

  • FormerMember
    FormerMember in reply to ral
    1. Hi Carolyn, just checking in to see  how you are getting on. I have a,smart port fitted  a nd start the new treatment next week. I'm all tattooed up ready for radiotherapy too but no start date yet. I hope you are continuing with the treatment and feeling well x
  • Hi Wispajo 

    Had my radiotherapy which was a breeze and had my 3rd round of kadcyla last Friday. Only side effect is a bit of tiredness but I think because you don't get the side effects you get on other chemo you forget to take it easy and slow down . My hair is still growing back. After my last treatment  the chemo nurse said if I don't want to do the 30 min observation after the infusion I am welcome to leave so my next chemo will only be 30 mins.

    Hope every thing goes well and please keep me updated on your progress.  If you would like to ask anything feel free and I will do my best to answer 

    Carolyn x

  • FormerMember
    FormerMember in reply to ral

    I'm so pleased you are doing so well and hope it continues that way too. Thank you for getting back to me and I'll let you know how I get on next week. Take care and keep smiling x

  • FormerMember
    FormerMember in reply to FormerMember

    So I had my first session of new treatment today. So far I feel fine so hope it continues. I am still waiting for radiotherapy. I hope you are still continuing to progress well x