Hello all. I am new to this site and just checking in. I have had two doses of EC, the most recent being yesterday. I had not been looking forward to it one bit, after the side effects immediately after the initial dose. I was quite frank with the oncologist at the review meeting the day before and in consultation with the pharmacist they tweaked my support meds so that I did not have any of the severe side effects at all.
Today a bit tired butt hat is to be expected. I just wanted to recount this to give anyone out there who feels that one must not be a wimp and must put up with SE to get a cure. The medics were so understanding and seemed fairly confident that they could alleviate my symptoms. In the event they were completely prevents. Well pleased and I will not be afraid of the next dose.
Hi WallyDug and welcome to the site. Sorry you’ve had to find yourself here but there’s lots of support and shared experiences. And you’ve already shared yours which will help others who earlier in their cancer ‘journey’. In fact I’ll just tag who will be starting chemo soon as I thibk your story will definitely be helpful. It’s great to know that the medics listened to you and that you were able to have meds adjusted to reduce the side effects.
Sending love and a big virtual hug, HFxx
Hi WallyDug
a warm welcome and sorry to hear your first round of chemo wasn't kind to you - glad your team got on it and sorted it for you.
Have you had a look at our Breast Cancer Chemo thread? It's a place for everyone having treatment to get together to share hints, tips and experiences. It can be reassuring to know other people are having the same experiences.
Wishing you the best for the rest of your treatment and looking forward to seeing you around here.
R
That’s so reassuring, I have my oncology meeting on Wednesday to discuss chemo and am very apprehensive of SE and long term damage. Good to hear you had a positive discussion. Hope it continues to go well. Hugs x
Wishing you all peace and calm in the storm...with a helping of laughter and joy to bring healing ️
@HappyFeet1 Thank you for tagging me on that post x
Hi sorry you’re on here, as we all are, due to finding out you have breast cancer. I am HER2 positive as well and will find out about my chemo tomorrow when I go to meet oncologist. Originally had DCIS diagnosed but after surgery came back HER2 positive small IDC. Probably starting chemo in a couple of weeks. Hopefully we can support each other on this rollercoaster ride of treatment.
Wishing you all peace and calm in the storm...with a helping of laughter and joy to bring healing ️
Hi I’m her2 positive as well. I’m see my doctor on Thursday to see my results from the millions of tests to see what stage I’m at because I have 2 swollen lymph node at my 1st ultrasound. Hopefully I can start some kind of treatment soon. I’m guessing chemo first but who know maybe it’s surgery first or radiation. The wait will be over soon
Hi I popped over to your profile and sounds like you’ve been well tested which means they’ll have all the info to plan your individual treatment. I’m quite new to this site and not sure how you ‘friend’ someone to keep in touch. Good luck for Thursday Hopefully once we have a plan it will feel like we’re moving forward, there’s so much support on here I’m so glad to have found other her2 positive people to chat to. Keep in touch!
Wishing you all peace and calm in the storm...with a helping of laughter and joy to bring healing ️
@Dclem4 Hi, I have asked you to be my friend. To do this, you click on the person's name at the top of their post and you will have options to either follow them or request them to be your friend.
Yes, absolutely, let's support each other. I am having my first cycle on Friday and I must say that I am looking forward to it - probably because I have been waiting long enough, imagining all kinds of things. I have a colleague and friend who is going to the same place for her own treatment although for a different cancer and she has been praising everyone who works there so I am feeling re-assured. I am also now seeing the treatment as a blessing when before I was scared of it. I will be taking my phone to listen to Yoga Nidra meditations. They are very powerful, they take you out of your body and bring to you a very relaxed state. All you have to do is follow the instructions, it is all about using the powers of visualisation. If you are interested, I can pinpoint you. They are all over the Internet but some are better than others. I prefer to listen to the Indian Yogic teachers. Yoga Nidra is also good to help you fall asleep although it is not its purpose but when you start, it is inevitable that you fall asleep but then your sleep is deep and you wake up refreshed. All the best x
@Ista Hi, I sent you a friend's request. I am starting chemo this Friday. Please read my response to @Dclem4. The three of us could support each other. All the best x
Hello, WallyDug. Sorry to hear you did not feel very well after the first chemo. I have been diagnosed with the same type as yours. Had my first chemo on 31 December but, thank God I felt really well. I did not know what yo expect at all so I kept checking myself out for signs. I have some pain to the spleen from probably the immune-stimulation treatment which I am trying to aid by eating correctly and drinking plenty of liquids, ginger and lemon helps. Hope this one goes better for you and heart goes to you to cope better this time.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007