Confused and waiting for biopsy results

Hi Elizg, sorry i missed your reply.  This site is really hard to navigate and keep on top of responses.  

Absolutely don't feel guilty about asking for advice or for just having a bit of a moan it's what this site is here for and no one minds - I have had my moans too.

I only sound positive because the initial shock has worn off and because I have my treatment plan.  As time goes by we just kind of adapt to our situation I guess and with breast cancer being so treatable it's not too difficult to feel positive.  I do have the occasional wobble as I'm sure a lot of us do.  

Keep in touch and feel free to moan any time. xx

I guess once you know what's what that's when you can start dealing with thing's so much easier. The occasional wobble is understandable.

I've just had a call from breast surgeons secretary. She said she has spoken to the breast care nurse and they had a meeting today about me and at next weeks appointment they want to discuss options and possibly more biopsies.

So I'm still unclear as to what's been found. If it is cancer or isn't or they aren't sure. What does this mean? I can't take anymore waiting, I can't eat or sleep and just exhausted with the worry. x

This is awful leaving you in limbo but it sounds like biopsy not giving a clear diagnosis of cancer which is positive as it might just be early benign cell changes that they want to double check xx

So sorry about the waiting Elizg I found it horrendous too and I also wasn't able to eat but you must try.  I found smoothies worked for me as I couldn't manage solids.  Frozen fruit, frozen banana and water or juice.  With solids I'd have a bit of toast washed down with tea worked.

I was warned at my biopsy that if they could't get clear results that I would have to go back for more biopsies.  It does't mean it's good or bad.  If they are having difficulty getting clear results then it's probably as Grogg has said.

It doesn't help with the waiting but just remember that even if if it turns out to be cancerous that breast cancer has a very high success rate.

Really hope yours turns out to be benign.

Hi Grogg

I actually feel more relaxed today, think I let it all get to me. What with waiting on calls and so on.

I'm a little worried that my partner can't come in with me next week, I'm not good at remembering things that are said to me. They said he can wait in the little cafe in the unit and that way he won't be too far from me. They also told me that at my appointment it's going to be the breast surgeon and a breast care nurse so I'm just glad someone else will be there to take in what's said. x 

Hi Godwilling

I've decided to just keep busy and doing things that don't really need to be done, anything to occupy me. Not as bad today, had some sleep. My partner came home with lots of smoothies for me so I'll make sure I go through them, thank you for the advice.

I know they can't tell you much until all tests and results have been done, and that's what I've found difficult but coming on here asking for advice has put my mind at ease a alot, I really appreciate it.

My partner can't come in with me next week, I'm not good at remembering things that are said to me. They said he can wait in the little cafe in the unit and that way he won't be too far from me. They also told me that at my appointment it's going to be the breast surgeon and a breast care nurse so I'm just glad someone else will be there to take in what's said. x 

Hi Elizg, glad you're feeling a bit better today.  You can take paper and pen in with you to write things down or you can maybe  have your partner on the phone or video call so he can listen in.  You should write down any questions you and your partner have before you go in.  

There is an a macmillan app someone on here told me about that helps you keep track of appointments and note down questions you have so you don't forget.  I haven't downloaded mine yet and I hope it was a macmillan one - will let you know if I am remembering wrong.  

I've been keeping busy doing the same as you.  I' m a clean freak so have been doing even more of that, I tackled the garden today and am about to get stuck into my ironing.  You can try learning a language if you're into that.  Great app called duolingo, it's fun and free.  Very hard to think about cancer when you're trying to conjugate verbs

This site has been a life saver for me too.  Keep keeping busy and pushing forwards and you will get through this. xx

Hi GodWilling just looked for the Macmillan app and its apparently no longer available . Only organiser they have now is a paper one .

 There is another type of app on apple  think it was vine 

Thanks Northerner, I looked for it and couldn't find it and came across Vinehealth recommended by NHS according to them.  Is this the one you mean? Seems good, was just in the process of entering all my appointment dates.  

Hiya. Hope you're ok.

Had my appointment today. Still no clear answers. The reason the biopsy came back clear was because it didn't reach exactly what they needed to get. Turns out it's calcifications that were found and that's what's worrying them.
I've been told I need to have urgent surgery to remove what they can and also tissue around it. He wanted me in this week or next but unfortunately the hospital have been told to stop all surgery in hospital apart from major life saving operations.

He kept apologising and said unless the rules are relaxed very soon it could be a few month's before I have it done.
I'm to go back next week for another mammogram and a biopsy done whilst having the mammogram but he can't guarantee the biopsy will show anything because of where the calcifications are.
He said what's happening with me can only be described as being on a knife edge.
Once the results from the surgery are back he said he will sit down with me and discuss what happens in the future. x