Confused and waiting for biopsy results

Hi Elizg welcome to the forum and sorry to hear how confused that you are but little wonder you are feeling  like this with the confusion around what might be going on for you and leaving you to go away to worry about this that's neither fair nor pleasant for you.

It may be that something has shown up on ultrasound that didn't show up on the Mammogram and this can happen but the ultrasound is usually best as it is more able to pick up things in a broader area and with some depth as well. Mind you it does sound as if the person doing the Mammogram has seen something that has concerned them or they wouldn't have gotten someone else to have a look.

However, and you have sad this yourself that you have had cysts before and this could yet be cysts and could come back as not sinister at all which I hope that it does. I wish I could say something that would completely ease your mind but I'm afraid I can't but what I can tell you that we will be thinking of you and will be here for you as needed so please do come back and let us know how you get on .

Sending some huge big hugs your way for now. xxx

Hi GRANNY59

Thank you for your reply. I feel a little more relaxed after your message, think I went into panic mode again yesterday and wasn't sure if I made sense.

When my partner is home I don't feel too worried, but when I'm on my own that's when I start thinking, and thinking turns into worry. I just can't get out of my head what the consultant said.

I just want Wednesday morning to hurry now. I don't think my partner is allowed in with me but he's taken the day off work anyway and when I phoned Macmillan just to chat the lady said to ask the consultant if it would be ok to phone my partner and put the phone on speaker. That way he's sort of with me, he will be sat outside waiting. 

Thank you again, really appreciate you're kind words and hope all is ok with you. x

Hi Elizg,

Sorry you are gong through this.  The waiting is the worst.  Hopefully your biopsy results come back clear but if they don't just remember that breast cancer has a really good success rate.  I am very newly diagnosed (found out about 10 days ago) and it was a huge shock, the waiting was awful but then when they gave me my treatment plan I felt much better. Keep posting on here if you need to chat and someone will respond.  Wishing you all the best for your results.

Hi Godwilling

I'm so sorry to hear of your diagnosis. Sending you all my positive thoughts. 

You're right, the waiting is the worst. My anxiety has been through the roof.

I've just had a call from the consultant. He said the 2 biopsies they took didn't show cancer but he wants to sit down with the radiologist to just go over them as there's some concerns and I'd need to come back for more biopsies. I didn't even ask what all this meant and what concerns they had.

He mentioned something about the mammogram I had. He said not to come in tomorrow for my appointment as theres no point until he's spoke to the radiologist. 

Now I'm even more confused and worried. 

Hi Elzig,

I'm so sorry you have to wait again before getting some sort of definitive answer.  I had to do go through something similar.  

First I had to go back for a second more enhanced mammogram which didn't clarify anything so then back again for an ultrasound which again didn't clarify anything but showed that there was an area of concern so back again for biopsy which showed cancer and DCIS (i think that is pre cancerous cells) and then back again for MRI but not fully sure why the MRI.    

It was all very stressful and frightening but once I got the diagnosis and my plan it's been a lot better.  The same I think will happen for you once you finally know.

Hopefully they are not sure because it's either nothing or because you are at the very early stages and it's proving difficult to get definitive results.

Waiting is the worst.  I'm still waiting, waiting for the operation on the 16th Jan to see if it is indeed as it looked on the MRI and if they will be able to remove it all etc etc

Being on this forum is what helped me with the waiting either talking about myself or reaching out to try and help others.  Hopefully it helps you too.  Message me any time and I'll message back when I see it.

It's a tough ride but we'll get through it.

Sending you lots of good wishes, positive energy and hugs.

@Elizg sorry you are still in limbo.  It's an awful feeling.  I had to have a biopsy at my year 3 mammogram when something showed up on my right breast - I had DCIS in right breast 3 years earlier.  After mammogram they did ultrasound and asked me if I had knocked mhy breast but I couldn't recall.  They then did a biopsy there and then and said they would ring on the Friday with results (it was a Monday they did biopsy).  Friday and by 3pm no call had come so I rang them.  They told me the biopsy results were fine but she hadn't rung me as she was making me another appointment to repeat mammogram.  She said she would ring Monday with appointment!  She didn't ring!  Then Tuesday I had a letter through mail to say I had appointment to see Breast surgeon in 3 weeks time!!  I went in to full panic mode.  Why did I need to see surgeon!   So I rang my Breast care nurse (in my hospital once you'e been treated for BC you can call your named BC nurse anytime, even years later.  She told me first time we met, she was now my advocate).  So I rang and she was on leave but her colleague spoke to me and looked it up on computer and said it was for a repeat mammogram and it was just procedure to say you have appointment with surgeon.  She then said she would try to get me earlier appointment as she understood the stress of waiting.  She rang me back and I was seen the following Monday.  They repeated mammograms and ultrasound but whatever they had seen had disappeared so they said it must have been a bruise.  My year 4 & 5 mammograms have been normal.

Hi Godwilling

Waiting is really difficult isn't it, you try and keep busy but it's always there, you just can't seem to relax.

You really have been through it, can't even begin to imagine how you feel. Having to go back for tests and so on, and still not sure what was happening until biopsy.

I really hope you're doing ok and you sound very positive which is great. 

I phone Macmillan and spoke to a nurse as I just needed to understand what was happening. She said the same as you that it could be early stage and that's why the biopsy came back clear or that they didn't get enough tissue or the right area. And if it was an infection or cyst it would've shown up straight away on the mammogram or ultrasound and with my consultant being very concerned and needing to speak to his radiologist that it's possible it is early stage.

I've had an appointment through for the 13th January to see him. Not sure what for but I'm still getting a phone call off him or a member of his team on Wednesday to see what radiologist has said and if I need another biopsi. 

I hope your surgery goes well and will be thinking of you the while time. Keep me updated.

Thank you so much, your kind words really help. I always feel guilty for asking for advice so tend to wait until I just need to get it all out. x

Hi Grogg

Thank you your reply. 

Can I ask if you're ok and clear now? 

Really pleased your last lots of tests were ok, a huge relief for you. 

Knowing there's nothing you can do to make things happen quicker makes the waiting even harder. And I'm always thinking what if things get delayed or appointment gets cancelled, then I start to worry even more. 

The last 2 years I've been in and out of hospital. I have severe endometriosis and in 2018 I had a Bilateral Salpingo-Oophorectomy,  I had all different tumours on Ovary (none cancerous) and all organs were stuck to bladder and bowel  and then last year a Hysterectomy as my insides were a complete mess with endometriosis. It's still a mess (specialists words) and I'm due to be seen again 25th January.

It's been a difficult couple of years, I'm 43 and went into surgical menopause the day after my first surgery, didn't cope well with it. I was put on HRT but earlier this year they told me I had to be put on a new one but with an extra one as to try and slow the growth of endo down. 

I was told to stop taking all hormone treatment untill I had a diagnoses from breast surgeon.  I'm doing ok without it apart from the hot flushes, which I've suffered with from the first surgery, have to keep going outside in the cold.

Sorry the rant, I keep telling myself 4 more days and hopefully we will know. 

My breast has been aching the last few days and neck and shoulder, it's probably the stress or the biopsy, I will mention it Wednesday when I speak to him. 

Yes I had the 5 year all clear.  My mother had hysterectomy at 40 when I was 3 abs went into menopause.  The treatment then (60s) was the new wonder drug Valium !  She had a breakdown trying to come off it and had out patient support from local mental hospital-as they were called then!  I'm lucky I've sailed through menopause!  Few flushes and irritability but that's it!  My sisters suffered though and i expected to too! Strange life.  My sister just older than me had hysterectomy and her insides a mess too due to repeated surgeries on her bowed & bladder.  She's refused any further surgery as the scar tissue causing most of problems now ! 
Yes stress caused aches & pains !  We all get the phantom breast pain until we have certainty!  
Im sitting in bath now as no one can talk to me.   I'm in Wales do been restricted with lockdown for ages .  My hubby, daughter & her fiancé who lives here too makrvgor a full house and I need space x

Great to hear you've had the all clear, so pleased. 

Ah yes, valium. I've heard about how women struggled with that back then, so sad. I hope she recovered with help, awful to go through. My Mum was fine going through it, hot flushes and that was all so I thought I'd be ok. I'd never felt so low and felt like a completely different person. Even now I struggle some days, I've forgotten what it's like to feel really happy, it's like a numb feeling. 

I understand why your sister has refused further surgery and that's the way I'm thinking now. I have more pains now than before surgery. Was told some of it could be scar tissue, so I'll see what specialist says when I go on the 25th. Hope your sister is ok.

This lockdown makes it even harder doesn't it. I'm in Wales too, and my son and his partner moved just around the corner before the last lockdown to be closer to us just after they had their first baby. Knowing they are at the end of my street and we can't see each other is so hard. My partner works long hours so when I'm here on my own I start thinking. Don't like being on my own! 

You take time for yourself and try and relax, hope your day gets better for you. x