Hi all. I was diagnosed 28th October 2011 with invasive lobuler breast cancer. Having an MRI scan tomorrow, the probably surgery. Is there anyone else with this type, or recently diagnosed?
Hi, I am new to and a little further down the road, same diagnosis. Just had first course of chemo, after lump removal. It's a very scary time and if anything like me it all seems to happen in such a rush. Good luck with the scan it was like a huge polo mint and nothing to worry about. Best of luck
Thanks Twinkle - I like the idea of a huge polo mint!! Everyone seems to have different treatments and in different orders. I have had a mamo, ultrasound and biopsy and the MRI is to determine how much surgery I need (I think). When were you diagnosed? What is chemo like?
Hi, Same pattern as you, diagnosed Start of sept, had to have lymph nodes removed first as they thought that there was something On the MRI so had to have further biopsy. Then had 3 lots of surgery a port fitted to admin the chemo and started chemo last wed. The actual chemo was fine the nurses were amazing. The cold cap is nasty but I am going to give it another go. felt fine first couple of days then 3 days feeling off and a little weepy .
Noticed some of my body hair coming out tonight which is very strange to experience. I was reading one of the posts about chemo and there are some really good tips that I will follow. I am still in the can't believe it is happening camp but have just booked Xmas dinner out and have started to work on my diary to decide what I can and can't do over the next few months. I havent been very sociable and am only now meeting up with all my friends, I am determined the try and lead as normal a life as pos . let me know how you get on with yr scan. X
I am new here too, I was diagnosed in July, have had wide local excisions both sides with ax clearence one side
I have just had my first chemo, FEC this week via a PICC line, so far i'm feeling good, no sickness
I braved the cold cap and although it was freezing for about the first 15 minutes i soon got used to it after that. There was a lady next to me who had used it the whole way through her 6 course and she had a good amount of her own hair so she was good inspiration for me to continue with it.
Be strong, rely on your true friends, you will find out who they are as you go on this journey, and remember you are not alone
I am drawing great inspiration from this forum and learning so much from everyone on it
I too am in the same situation, I was diagnosed on 26th October with lobular breast cancer, I have had a second core biopsy on my lymph nodes this afternoon and am having an MRI scan on Monday afternoon. I am very scared but I am going to beat this.
It would be nice to keep in touch with someone who is going through the same if that is something you would like to do?
Raineanne - the MRI is ok actually. I had to lie on my front ( giggled at the cut outs for the boobs!). Took about 1/2 hour but not painful. Try not to worry about it.
Twinkle and Mimi - sorry - now I am in reply mode I cannot see your messages so cannot remember where you two are at - sorry! Just realised I can open another tab so can reply properly to you!
Twinkle - you are right - the MRI was ok - just a little uncomfortable. You are right about trying to lead a normal life - that is also my intention.
Mimi - I see you were diagnosed in July but only now having chemo - that seems a long time. You are brave with the cold cap! I told one of my closest friends yesterday and have just started telling the in-laws. My brother and sister know as well.
Evening, ladies, Pinksunfish, glad your scan was ok and telling people is very difficult. I have tried to keep it very low key but having children and realising that they need support from their friends and their school it's a difficult thing to keep quiet. Again with work I haven't been to work since september due to the number of ops and I really don't know whether I will be fit enough to go back until the treatment is finished, I know we all manage chemo differently and I am sure it will get better but have been very off colour.
Mimi and Raineanne lovely to hear from you looks like we are all in similar boats would be great to keep each others spirits up and share experiences.On a seperate note I am getting cracking headaches which I think are my sinuses not sure if this is a side effect or just bad timing have you had this since starting chemo ?
The reason i have only just started chemo is because i had to have more scans after my initial mamo, ie MRI, needle biopsies etc. The curse of the "big boobies" and difficulty confirming everything, then i had 2 ops, WLE's and axillary nodes, before the chemo.
Anyway, it's now day 4 post my 1st chemo, i am still feeling fine, no sickness, no headaches, just completly normal, so i'm enjoying this feeling and hoping it lasts. I've washed my hair for the first time today, i used baby shampoo as i felt this would help rather than putting loads of chemicals from "normal" female shampoo's.
I'm going to see a lady about a wig tomorrow,(not that i need it at the moment) but i would rather be prepared and have it ready for if/when i do need it. A couple of friends are coming with me, and we are making it into a girlie lunch date, hence a nice day out. My friends are also going to try some wigs as they want to change their hair colour and i'm going to try a blonde one(even though i'm dark haired) just because Hubby keeps saying "go blond"
It's really nice having some "company" along the road, let's keep this topic going and gather strength from each other, and most of all let's enjoy life.
Mimi - did you go for blonde, a wig party sounds like fun!
Had my MRI this afternoon not as scarey as I thought but lying there all druged up, listening to Michael Bubles Christmas CD it all seemed so surreal. Back on Wednesday to see the consultant and will hopefully find out the order of my treatment, if the results of my lymphnode core biopsy comes back conclusive this time.
Hope everyone else is coping with whatever they are facing at the moment, please keep in touch it really does help. Take care al,l I look forward to your next updates xx
I'm a bit ahead of you, had lumpectomy for two Stage 3 tumours at beginning of April, have had 6 FEC chemotherapy sessions and am now on day 5 of 28 radiotherapy treatments. Am also taking Tamoxifen for the next 5 years. I didn't try the cold cap (too much of a coward) but good for you!
One thing I did pick up on was the fact you said you were weepy for a few days after chemotherapy - I didn't notice until almost my last cycle that the anti-sickness tablets prescribed not only suppressed the nausea and sickness, they suppressed the serotonin in the brain. I'm wondering if that's what caused the weepiness, 'cos I always cried for 3 or 4 days afterwards - weird!
Body hair coming out - yeah, had that too, trying to be positive and rejoicing in the fact that I haven't had to have my bikini line waxed for 6 months!
Good for you on booking Christmas dinner and sorting out your diary. I'm still not that organised!
